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Category Archives: Activities out of the house

While I’ve been stuck in bed the past few months, I’ve spent a lot of time on the internet, reading blogs, watching YouTube and finding interesting people on Twitter. It’s struck me in the past week or so how many of the spoonies I “follow” online manage to achieve a lot, in spite of their illness. In some cases, they’ve used their illness to their advantage. As thoughts about this were swirling around my mind one night, I pondered how these women manage to do so much, when I seem to do so little. Was it because they weren’t as sick as me? Possibly, but that’s not the whole story. After much deliberation, I decided it was because they weren’t afraid to admit they had dreams and begin taking baby steps towards achieving them.

Failing yet again

When this academic year began, I had set my mind to focus on getting through my studies, it’s no surprise then that I fell into a depression when I got so sick again. Seeing weeks go by without my being able to study has been really difficult. I love learning, since I can remember, all I’ve wanted to do was go to university, and I love learning about politics. In a way, having tried so hard for so long to get through my degree only to keep “failing” at completing modules has just made me afraid to try anything else. I wouldn’t admit it out loud but my subconscious was saying, “why bother trying to do something you love? Your illness will only ruin it anyway.” I’ve been making plans but the majority of them have begun with the sentence, “when I’m well enough…”, which just isn’t happening.

Don’t misunderstand me, I haven’t given up on university, I will find a way to complete my degree, and I certainly haven’t given up the belief that I’ll get better, but I’m done waiting around for life to begin. That’s how Paul and I have felt, we’ve pushed ourselves to complete things, and life itself has been a real struggle for a long time, but when it comes to deepest desires, the things that mean the most to us, we’ve popped them on a shelf for “one day”. In a way, that’s allowing my illness to control us, the fear that we might only get one chance and that my illness will blow it for us, has prevented us from doing some things. There’s a certain amount of wisdom in that, but there’s been a lot of fear in that too.

Vintage pocket watch with open lid and chain on wooden surface

Making changes

This week we took the plunge and used some of our savings to book a holiday. The idea that we need to save for a rainy day has always been on our minds, and while that is generally a good principle to have, it’s made us afraid to spend any of our savings. Since we first became a couple and I got sick, we’ve been talking about going to Paris, and therefore, we’ve never wanted to spend our money on going anywhere else, because what if we can never save enough to go? Paris will still be there in future years when it is the right time for us to go, and I’m not going to believe that we’ll never get to go there if we go on holiday somewhere else. We know that we both need a holiday and we’d love to have a belated honeymoon. After all, lots of people generously gave us Euros at our wedding for that purpose. As we were chatting away about this, we both came to the realisation that although we’d love to go to a city and have an adventure, we’re both exhausted and what we really need is some time away somewhere hot, with a pool, and a beach. That’s what we did. We’ve booked a last minute holiday to Gran Canaria for a week. The fear that I felt when I clicked the little button to pay online was ridiculous, which made me all the more certain I was doing the right thing. It’s not like we’ve spent all of our savings on a crazy extravagant holiday that I obviously can’t manage. We booked something nice, albeit the cheapest place we could book, with disabled access. I don’t think I need to say any more to prove quite how unfounded my fears are.

Maspalomas, Gran Canaria

Having bitten the bullet on spending savings on a holiday, I’m determined to keep making progress on my dreams. I think putting all my eggs into the university basket was a mistake, and not one I’m going to repeat. What’s most important though is that I stop making my own contingency plans and start seeking God’s plan for my life. It might not be the most comfortable life, but I know it will be the most fulfilling life. Right now Paul and I are praying into our future and asking God where He wants us to step out in faith. Watch this space for more exciting adventures.

Love Katie x


I had a couple of “good” days last week so I took the opportunity to escape the confines of my bedroom and head to the shops with my little sisters, mother-in-law, and Paul (who hates shopping). It felt great to get out, especially as I managed to bag myself some beauty bargains. I have been wanting to do more beauty posts and videos both on here and over at my You Tube channel.

Beauty is more than skin deep

Since I’ve been really unwell, beauty for me has become something that has not only made me feel more beaut-iful (check the pun), but also allowed me to have a better relationship with my body. I know that sounds a little bit like the painkillers have really started to turn my brain to mush but allow me to explain. When you’re in a lot of pain and you constantly feel exhausted you begin to see your body as a prison, I know I’m not the only sick person who feels this way, but I’ve found that when I started experimenting with make up, bath bombs, lotions, etc, I began to feel happier in my skin again. The feminist side of me screams, ‘but isn’t that just the media telling you need to look a certain way?’ No, it’s different, a subtle difference I’ll admit, but there is a difference. Beauty products and routines allow me to feel human by making the most of my  body. I know that it’s not make up or body butter that makes me beautiful, but my skin does feel smooth and soft after my skin care routine. Very often, I’m in too much pain and too exhausted to do any kind of beauty routine and I’d choose being able to leave the house or spend time with people over doing my make up any day of the week, but when I can, I’ve come to love spending time looking after my body. Not to mention the fact that my body needs a lot more care than the average twenty-something year old because of my illness.

 

A new creation is born

These are thoughts that have been whirling around in my brain for sometime now but it’s only in the last couple of weeks that they’ve developed into something more. While I’ve been stuck in bed I’ve been watching a lot of make up tutorials, and beauty product reviews/hauls on You Tube, and finding new beauty blogs to read. It wasn’t long before it became glaringly obvious to me that there was a big gap amongst the huge wealth of material out there. I couldn’t find anything devoted to making sick people feel beautiful, and more importantly, I couldn’t find anything for someone with limited energy and high pain levels. With this revelation was birthed a new feature – Chronically Beautiful. I’m going to fill the gap so that anyone in a similar situation to me can have access to tutorials and reviews to fit their needs. I have loads of ideas but to give you a sneak peek, you can expect to see a big MUA make up review video soon, and posts like 5 minute make up routine, and daily skin care routine coming soon.

For now, I leave you with my first ever haul video:


 

As I’m new to this stuff, I really value feedback, so please leave any thoughts you have in the comments box below or on my You Tube channel.

Love Katie x

P.s. If you are or know of any beauty companies who would be interested in sponsoring this new venture then please contact me at the usual email address (chronicallykatieblog@gmail.com).

FASHION is a whole other ball game, but one that I intend to play so check back here soon. Don’t miss any updates by subscribing by e-mail in the box to the right of this post and to my You Tube channel.


Milgi collage 2

Last night I got to leave my bedroom to see an actual person. Okay I live with my husband and it hadn’t been that long since I left the house, but somehow not seeing my friends for weeks made me feel like I’d been in hibernation. Last night P and I  went to one of our favourite cafe/restaurant/bars, a place name Milgi and my tummy is still full. I am yet to find a single person who has been to Milgi and not loved it. The place is a treasure trove of art, creativity, and interior design genius. I always forget quite how much I love the place, and how happy being there makes me. I was annoyed with myself for forgetting to take my digital camera. I wish I could have taken some photos of my favourite parts of the place. Instead I was stuck with my phone camera, and since I am still using my iPhone 3GS I don’t have a flash. Oh well guess it means I’ll have to go back soon, eh?

Aside from the pretty interior and lovely atmosphere, Milgi has some of the best food I have ever tasted. The restaurant is completely vegetarian, something P and I would have turned our noses up a couple of years ago. I wouldn’t have imagined P loving bean burgers when we first met. The place has changed the way we look at vegetarian meals though. Last night I tucked into one of their legendary nut roasts, and for pudding cinnamon doughnuts with chocolate dipping sauce and cream. All made on the premises.

Enough about my love of food though and more about the person we had dinner with. I’ve mentioned M a couple of times on here, but probably not enough considering she is one of our best friends. She’s the sort of person who you always makes you laugh until your sides hurt. The night as a whole then was definitely worth braving the snow for (which Edith, my mobility scooter, handled wonderfully by the way) and the whole day it has taken me to recover. The night refreshed me a little so I feel a bit more motivated to get on with some university work, that’s a story for another post.

Love Katie x

 

Mobility Waterproof Scooter Storage Cover


For just over a week, I have watched weather reports and Facebook with jealousy. I love snow and since we didn’t get any last year here in the centre of Cardiff, I was desperate for some this year. For the four years I have lived in the city I haven’t had a chance to make a snowman or even play in the snow. This year, despite feeling really ill, I was able to make it outside. Not having to climb stairs is a real help.  Usually any cold makes my muscles tighten and cause me a lot of pain (it’s not fair that this doesn’t result in toned muscles) so I put A LOT of layers on. I mean a lot. It was like the longest strip you’ve ever seen when I came back inside. If it’d been a strip tease, you would have had to include an intermission.

P brought me a chair to sit on outside so that I could watch him make a snowman. It wasn’t actually that cold outside so I wasn’t shivering. He didn’t have much to work with since we had just about an inch of snow and even that was melting pretty fast. He did, however, manage to make some semblance of a snowman, which we then turned into a fashionable lady, boobs and all.

The other reason I really wanted to get snow here was because I knew (or so I thought) that Didi would love playing in it. I seriously misjudged this. It turns out that all the pampering she receives has turned her into quite the wimp. She hated being outside and touching the cold stuff. When we got back into the house she curled up on my lap and quickly fell into a deep sleep, and has remained there ever since. Traumatic experiences really take it out of her.

The last reason that getting snow was so great was because it gave me the impetus to try making a video for the first time. I used my iPad and the ‘iMovie‘ app to make the video below. It’s only 38 seconds long but I don’t think it’s too shabby for a first attempt. I reckon using videos on here a lot more is a good idea. It means that when I feel too sick and dizzy to look at the computer screen I can record a vlog, or be able to show you more of my world.

 

If you have a YouTube account please be kind enough to subscribe to my channel here and leave me a comment. I really value constructive feedback so share your thoughts, good or bad.

Time to head off into the snow again for a hot chocolate with my favourite guy.

Love Katie x

 

Apple iPad 2 Wi-Fi – Tablet – 16 GB – 9.7″ IPS ( 1024 x 768 ) – rear camera + front camera – Wi-Fi, Bluetooth – black

The New Apple iPad (16GB, Wi-Fi, Black) 3RD GENERATION


Yesterday was an exhausting but wonderful day. I’ve said (or written) before on here that sometimes I do things that are far beyond what I know my body can manage, but I do them because it’s worth the pain and exhaustion during and after the event. Yesterday afternoon is a prime example. Back in the summer I purchased a voucher from Living Social for me and my best friend, R (remember her from this post?), to have a makeover and photo shoot at a studio in Cardiff.

R lives all the way in Kent so even though her birthday is in November, yesterday was the first opportunity we had to go to the studio. There was a point back in November when I thought I’d ballsed it up and that we wouldn’t be able to go at all. It was mid-Nanowrimo and I was feeling really sick, and basically I forgot to book before my voucher ran out. Thankfully, when Paul rang, the lady at Revolve was really understanding and let us book anyway. Phew.

Source: Google images

Source: Google images

As usual on an important day, my body decided to have a bad day so things didn’t go to plan yesterday. Despite resting the day before and going to bed at a reasonable time, I woke up yesterday morning feeling like I’d run three marathons the day before. I was utterly exhausted. We needed to be at the studio by 1pm and I wasn’t able to get out of bed until 12pm. Not a great start, but thanks to a higher than usual dose of painkillers and a cup of coffee that closely resembled oil, I was at least able to move quite quickly when I did get out of bed. Unfortunately, as I was on a huge high, I couldn’t think straight so I was still darting around the house like a mad thing when R arrived.

I’ve realised lately how important it is for me to eat regularly. I probably should have reached this conclusion much sooner, but it’s become apparent just how much worse I feel when I am late eating any of my three meals or skip one. I lose my appetite quite easily when I feel sick (hard to believe when you see the size of me I know) but now I make sure I eat at least a little something wholesome for breakfast and lunch each day. It wasn’t a good plan then for me to skip lunch yesterday because I didn’t have time to eat. It also meant that when we arrived home later after the photo shoot that I pigged out on high sugar and fat snacks like biscuits. Naughty naughty. This is a bad idea for anyone, but when your body puts on a stone at the sight of ice cream, it’s a really bad idea. I can add yesterday to the long list of examples which have taught me to plan ahead better so that even if I can’t think laterally Paul knows what I need and when.

Despite all of the things that went wrong, R and I arrived at the studio and, as it always does, everything worked out fine. Better than fine actually, a brilliant afternoon was had by all. I love make up but I don’t often have the energy to spend time doing it, so I love it when someone else is doing it for me. A professional make up artist choosing from their array of expensive make up is a great treat for me. Of course I love having my hair done too. I can’t lift my arms without being in a lot of pain so even if I knew how to style a beehive, I wouldn’t be able to, so any opportunity I get for someone to style my hair like that, I jump at the chance. The three times I’ve had a hairdresser style my hair into a beehive, whenever I’ve been asked how high to take it, without a second thought I answer, “as high as you can.”

Not only were all of the staff lovely and paid us compliments (never a bad thing, flattery goes a long way), the studio were really good at helping me manage my disability. Paul had told them beforehand I was disabled, but hadn’t gone into any details. The photographer picked up on what I could and couldn’t manage though by how easily I walked (using my stick and R’s arm) and made sure all the photos that included me didn’t contain any difficult poses. This was a huge improvement since the last time I was at the studio. When I went to the same studio with my sister two years before, the photographer had me sitting on the floor, doing poses that required balance, etc, even though I’d explained to her my illness. At the time I went along with it because I never want to say, “no that hurts too much.” This time, however, the only time I was standing in a photo was when I was leaning against a wall. The rest of the time I was sitting on some kind of prop or chair, but R had photos lying on the floor, and other types of poses I would have struggled with. The fact that I didn’t need to mention my illness the whole afternoon made the time so much more enjoyable. I’d never expect someone to be that aware of what I can and can’t manage, but it certainly is nice when it does happen.

Source: Google images

Source: Google images

The best bit of the afternoon though was seeing how gorgeous R looked. She is having a difficult time at the moment and definitely deserves some pampering. She is one of, if not the, most beautiful women I know. When she was having her photos taken, she actually reminded me of a model or a film star.

The hardest part was when it came to choosing our shots. R looked so wonderful in all of hers that I wanted to buy them all for her, of course monetarily, that would have meant not paying rent. I have to admit, I didn’t feel great about myself looking at the photos of me, but I wasn’t too upset since the afternoon was about giving R a great birthday treat and not about boosting my self esteem. In the end, we were able to come away with four lovely shots though, which we were both happy with. I can’t wait to put copies of the photos into frames so that I can re-live the memory of that afternoon many times over.

So, what do you think of the photos?

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Love Katie x


At the beginning of the trail you had to take a photo of yourself to identify your film, this is a copy of mine and Paul’s. Sorry the quality isn’t great.

When Paul and I returned home from honeymoon, there was one over-riding thing I was certain I wanted to do- lots and lots of new things. While stuck on the sofa during that week and a half I had a lot of time to think, and I knew that this year I wanted us not to just do the same things we did the year before. While we absolutely loved and got so much out of our cinema membership, that time has passed now. We still love going to the cinema but we don’t have the time (and I don’t have the energy) to go as often as we used to, and we’d rather do something more sociable these days.

The societies fair seemed a great place to start in finding a new hobby, we found the perfect match in the photography society. We have a good digital camera but we don’t have a swanky SLR and I doubt either of us will become photographers (although you never know), but it is something we can do together and have fun. We would both enjoy learning more about photography and developing new skills, especially when it comes to using the darkroom so we both joined up. So far we’ve thoroughly enjoyed all of the meetings/activities.

A fortnight ago we did a photo trail which involved using a disposable camera to take photos on seven themes. Once the photos were developed, they were judged and prizes handed out for the best in each theme. We decided to work on one camera together because we thought it would be easiest and make it more of a joint activity. P and I really enjoyed trekking around town, finding ways to creatively interpret the themes. We both said we would love to do it again, and it really opened up our mind to think about taking more creative photos. I’m seeing opportunities everywhere now.

It was such a beautiful day to take photos. This is just a quick snap I took of Cardiff Castle on my phone but the sky looks so blue in it.

We got our photos back last weekend, and unfortunately a lot of them didn’t come out (bad flash) but the ones which did come out we were quite proud of. On the day P was content to just come up with ideas and let me do all the photo taking, but I managed to persuade him to take a couple. The day of the social and prize-giving P wasn’t feeling too good at all, so it was doubly good when he came first in one of the categories. It was great that we worked together on the photos and shared ideas, but it was a big confidence boost for him that it was his photo which actually won. Of course he tried to share the credit (and the prize) with me because he’s always so kind, but I think the glory belongs to him and I am very proud of him. Needless to say that brought a smile to his face.

Even though the photo trail wasn’t an official date afternoon, it was probably the best afternoon we’ve spent together since we’ve been back home as newly weds. We’re building memories together as a couple, learning new skills, and making new friends. What more can a girl ask for from a society?

I’m curious to hear of the best dates you’ve been on, whether with friends or a partner. Please share with me via twitter (@Chronic_Katie) or in the comments box below.

Love Katie x


Driving home for the first time on my new scooter

So something very exciting happened this week…I got a mobility scooter! Last Sunday, on the way home from Church my wheelchair broke. Since we had the money to get a scooter, we took it as a hint to hurry up and spend it. We had been praying for the provision of a scooter, which God did provided (prayer works!) so why wait around? I took Monday off from university to go look for one.

As a side note-We found out from the internet that there are two mobility shops in Canton, which is on the other end of the city from us. We do have a spare wheelchair but the core piece which secures the chair is broken so it’s not very reliable and we were worried it might break if we tried to go so far in it. We contact two of our friends who had cars but they weren’t able to help us out so P and I put a request out on Facebook and Twitter, and I prayed once again. Within ten minutes, someone we know from school offered to help us out. I was completely taken aback because I barely know this person.  I was astonished that someone would go so far out of their way to help us out. This girl is so sweet and kind. After dropping us off, she offered to come back and pick us up if we needed it. Incredible. Not only did this girl help us out, but it also made P and I feel less alone, that when we ask for help, there are people who care.

Anyway, on with the story. When I was “driving” my new scooter home, I just couldn’t believe that I finally had one. For around three years, I have had to be dependent on someone else and now I have my independence back! It feels so incredible. My mind continually races with thoughts about all the things I can do again now.

It’s quite overwhelming, but in a good way. It’s up to me again now to decide when I need to rest and when I should go out. When I commit to do something, I am just committing myself, and not Paul as well, which is great for both of us.

One of the things we discussed in marriage prep lessons was having more individual lives again. We spend nearly all our time together, which we love, but we know it’s also very important for us to have separate lives. Particularly for Paul, he doesn’t spend much time doing something that doesn’t involve either caring for me or for someone else as part of his job, and I think it would be great for him if he started hanging out with guys on his own and did things just for his enjoyment.

Watch this space.

Love Katie x

Zoooooooooom!

p.s. Just in case you don’t follow me on Twitter and were wondering. Unfortunately I didn’t win the Cosmo Lifestyle Blog Award. Big thanks to all of those of you who voted for me and gave me support. I hope you’re not too disappointed in me.


Check the clock on the right-hand panel.

That’s right, there’s only 16 days until my wedding. Today I am finding it hard to write, not because of my health, but because I am bursting with excitement! If you’re a regular reader then you’ll know that me and my beau are paying for our wedding almost entirely alone, and that the afore mentioned beau hasn’t been able to work much over the summer. In addition, my DLA is up for re-assessment, but it is taking me months to work through the form, so we don’t have that as an income either. The reason I am giving you this somewhat tedious update on my finances to explain the reason why Paul and I have changed our honeymoon plans. We would have liked to have to Paris, but we don’t have enough money so we have a new plan.

We have been lucky enough to have been given two nights at a very swanky hotel for the evening of and after our wedding. Then, we will travel to a friend’s house to stay as long as we like while they are away. And, if the weather is nice, we hope to go camping for a couple of nights too. We are both so flipping excited about this alternative honeymoon.

We are leaving Cardiff soon to go back to my parent’s house for the wedding so in the next two to three days we have to pack for our honeymoon. This involves a bit of planning. We don’t want to make too many plans, I’m not going to make a rigid schedule, especially because part of the reason why the new honeymoon plan is so great is because it allows us to actually relax.

On the other hand, we also don’t want to just end up doing what we would do at home either, so we need to think up some activities so that we can make the most of our time together with no distractions. We’ll be staying out of the city, in a small coastal town so I already have romantic walks and picnics on the list. And, obviously, mobile phones and social networking is banned. I was hoping though, that you, my lovely readers, might come up some good ideas or share your experiences, whether or not you’ve been on honeymoon.

What would you recommend we do on our honeymoon? And, any packing suggestions or tips?

Love Katie x

 

Have you enjoyed this post? Please consider voting for Chronic Katie to win the Cosmo Lifestyle Blog Awards by following the instructions here.


Image source: whatsfab.ca

Today has been a much better day. For one thing I’ve managed to not only get out of bed but also get dressed. P needed to go to the train station today so mum and I thought we’d use the opportunity of being in town to get some supplies for crafts which need to be done for the wedding, and also to get me a new outfit for my hen party.

 After much deliberation about whether precious saving funds should be used to buy a new dress, we (me and P) decided that since I would only get one hen party (despite what the statistics might say), that I should feel really special. And, as mum pointed out, it can be a hen party/honeymoon outfit so that made me feel like I was a little more justified in buying something. I didn’t go crazy though, mummy took me to the fashionable boutique of Tesco and I spent a whole £7 on a new dress. I did splash out on a new jacket too which boosted the total cost up to almost £30.

 Going shopping for my hen party/honeymoon outfit has made me even more excited about this weekend. I just hope that going out for a couple of hours today won’t result in being too tired to enjoy the weekend. No, you haven’t lost a couple of days, you are correct in thinking that I begin conserving energy for a big weekend three days before the event. I did so before the family wedding on the weekend too, and it still took me four days to recover.

 I really just felt so horrendous yesterday. The pain and exhaustion made me just want to sleep away the whole day. The problem was the pain was just strong enough (even with painkillers) to keep me from sleeping most of the time. I can’t articulate how much I don’t want to be that sick after my hen weekend. I feel terrible writing these things because I know there are so many spoonies out there who would love to be in my position. It sounds ungrateful to be saying these things, it’s hardly terrible that I’m going to Bath for Saturday/Sunday. Even more so, I know I am incredibly lucky to have a mum and sister who took the time to learn how to look after me so that I could go places without Paul, and even that I can get out of my house to go anywhere, let alone on a mini-holiday.

 I don’t count these blessings lightly, I am grateful for them. When I am confronted by the painful accusations and remarks of unbelievers and have days as bad as yesterday, I become even more acutely aware of just how much worse life could be. I think my mummy is so wonderful for patiently taking me shopping today. It’s no easy feat, it means giving me so much attention, and not much time to shop for yourself. I am so privileged.

 What are you thankful for today?

Love Katie x


 

Here’s me at second mummy’s house all ready for the wedding

I don’t usually post on a Sunday but I wasn’t able to post yesterday because I was at a family wedding. I’ll write more about how I managed the day soon, but for now I’d just thought I’d share the picture with you. Still in my pjs, recovering, but managed to get some weddingy things done online so the day isn’t a total loss. We’re at second mummy’s house so I don’t want to sit on the computer but enjoy sometime with my soon-to-be little sisters. Enjoy the rest of your Sunday. 

Love Katie x

 

 



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