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Category Archives: Inspiration

While I’ve been stuck in bed the past few months, I’ve spent a lot of time on the internet, reading blogs, watching YouTube and finding interesting people on Twitter. It’s struck me in the past week or so how many of the spoonies I “follow” online manage to achieve a lot, in spite of their illness. In some cases, they’ve used their illness to their advantage. As thoughts about this were swirling around my mind one night, I pondered how these women manage to do so much, when I seem to do so little. Was it because they weren’t as sick as me? Possibly, but that’s not the whole story. After much deliberation, I decided it was because they weren’t afraid to admit they had dreams and begin taking baby steps towards achieving them.

Failing yet again

When this academic year began, I had set my mind to focus on getting through my studies, it’s no surprise then that I fell into a depression when I got so sick again. Seeing weeks go by without my being able to study has been really difficult. I love learning, since I can remember, all I’ve wanted to do was go to university, and I love learning about politics. In a way, having tried so hard for so long to get through my degree only to keep “failing” at completing modules has just made me afraid to try anything else. I wouldn’t admit it out loud but my subconscious was saying, “why bother trying to do something you love? Your illness will only ruin it anyway.” I’ve been making plans but the majority of them have begun with the sentence, “when I’m well enough…”, which just isn’t happening.

Don’t misunderstand me, I haven’t given up on university, I will find a way to complete my degree, and I certainly haven’t given up the belief that I’ll get better, but I’m done waiting around for life to begin. That’s how Paul and I have felt, we’ve pushed ourselves to complete things, and life itself has been a real struggle for a long time, but when it comes to deepest desires, the things that mean the most to us, we’ve popped them on a shelf for “one day”. In a way, that’s allowing my illness to control us, the fear that we might only get one chance and that my illness will blow it for us, has prevented us from doing some things. There’s a certain amount of wisdom in that, but there’s been a lot of fear in that too.

Vintage pocket watch with open lid and chain on wooden surface

Making changes

This week we took the plunge and used some of our savings to book a holiday. The idea that we need to save for a rainy day has always been on our minds, and while that is generally a good principle to have, it’s made us afraid to spend any of our savings. Since we first became a couple and I got sick, we’ve been talking about going to Paris, and therefore, we’ve never wanted to spend our money on going anywhere else, because what if we can never save enough to go? Paris will still be there in future years when it is the right time for us to go, and I’m not going to believe that we’ll never get to go there if we go on holiday somewhere else. We know that we both need a holiday and we’d love to have a belated honeymoon. After all, lots of people generously gave us Euros at our wedding for that purpose. As we were chatting away about this, we both came to the realisation that although we’d love to go to a city and have an adventure, we’re both exhausted and what we really need is some time away somewhere hot, with a pool, and a beach. That’s what we did. We’ve booked a last minute holiday to Gran Canaria for a week. The fear that I felt when I clicked the little button to pay online was ridiculous, which made me all the more certain I was doing the right thing. It’s not like we’ve spent all of our savings on a crazy extravagant holiday that I obviously can’t manage. We booked something nice, albeit the cheapest place we could book, with disabled access. I don’t think I need to say any more to prove quite how unfounded my fears are.

Maspalomas, Gran Canaria

Having bitten the bullet on spending savings on a holiday, I’m determined to keep making progress on my dreams. I think putting all my eggs into the university basket was a mistake, and not one I’m going to repeat. What’s most important though is that I stop making my own contingency plans and start seeking God’s plan for my life. It might not be the most comfortable life, but I know it will be the most fulfilling life. Right now Paul and I are praying into our future and asking God where He wants us to step out in faith. Watch this space for more exciting adventures.

Love Katie x


I recently read a blog by one of my great friends, Sian Cooke, which inspired me so much I opened up a blank document, the second I read the last full stop. Her blog post was about not allowing the mundane to plague your life.  Right now I’m in a difficult patch, as I talked about in my last post, and when you’re in a situation like this it seems like the best thing to do is to bring down the hatches and do nothing other than what is necessary. The temptation is to adopt the victim stance.

I’m not planning on doing either of those things though. I’m not going to pile on too much and make the situation worse, but I won’t be sticking to the mundane, and abandoning my love of curiousity and doing new things. As best as we can, P and I are sticking to weekly dates and I’m looking for at least one new thing to do each week. I’m not feeling sorry for myself, instead I’m focusing on everything I am thankful for. I am being honest about the situation I am in, without allowing it to control me. I cannot control mine and P’s sickness but I can control my response to it.

I will…

  •  keep the romance alive in my marriage
  • stay passionate and enthusiastic about my degree
  • do my best to give as well as take in my friendships
  • fill my days with fun and laughter
  • love my God and put him at the centre of my life. I will continue to trust that His plan for my life is the best plan, and trust that He can use all my suffering for good.

Don’t give in to your sickness, take back control! Now is not the time to give up, it’s time to fight harder than ever for the life you want.

 

Love Katie x


Life’s all about moments of impact and how they changes our lives forever.
But what if one day you could no longer remember any of them?

 Yesterday I re-watched The Vow, a film about a woman who suffers from anaemia after a car accidents, and her husband’s fight to get her to fall in love with him all over him again. When I saw the film in the cinema, I must admit I cried, the story is so heart-wrenching. Imagine my horror then when I realised that the film was based on a true story.

I know it’s pretty cliché to write a blog post about a film, but I think we can make an exception because a) I watch a lot of films so it was bound to happen at some point and b) because this film was based on a true story. Something about this film deeply disturbed me. The thought that I could wake up any day and lose Paul or any of my loved ones is a very sobering one. I know this idea is thrown around a lot, but when you actually stop and think about it, it changes the way you act. It means that I actually take thirty seconds to give my husband a proper goodbye, and I never want to sleep on my anger. It feels like I’ve heard a lot of stories of tragedy lately, it’s easy to let those things roll off my back, safe in the certainty something like that would never happen to me.

The other thing that stopped me in my tracks about this film was thinking about how you manage to come to terms with such a tragedy. Not even just come to terms with it, but to actually find the strength day in, day out to fight for your marriage. That is real love. I got the answer to my questions when I looked up the book. The couple managed to get through such a tough trial through their faith in God.

If you haven’t guessed already, I am on my way to Amazon to order the book. As a newly wed I am always on the lookout for couples whose faith has strengthened their marriage, especially in times of trials and suffering. Expect more posts…

Love Katie x

 

The Vow (DVD + UV Copy) [2012]

The Vow  [Paperback]

The Vow: The True Events that Inspired the Movie  [Kindle]


21-DayChallenge

Today is day three of Gretchen Rubin’s ’21 Day Relationship Challenge’. Every day I receive an email giving me a challenge which will bring more happiness into my relationship. At least that’s the plan.

I have been a big fan of Rubin ever since I read her book ‘The Happiness Project‘ (see below). Her ethos is not to buy more stuff or make massive changes to your life, but to find more joy and happiness in the things and people you already have, by making small changes to your day.

I don’t have a huge amount to say about the challenge yet, I think I need more time to see the impact it has on my marriage, my friendships and other relationships. I am enjoying it so much that I wanted to share it with you on here, to give you a chance to try it out for yourself.

You don’t have to be married or have a boyfriend to do the challenge, in the comments section on the blog, lots of people are doing the challenge with their friends, their daughters, the kids they teach, all kinds of different relationships.

You can find out more about it on The Happiness Project blog.

The books I love by Gretchen Rubin:

The Happiness Project: Or, Why I Spent a Year Trying to Sing in the Morning, Clean My Closets, Fight Right, Read Aristotle, and Generally Have More Fun

Happier at Home: Kiss More, Jump More, Abandon a Project, Read Samuel Johnson, and My Other Experiments in the Practice of Everyday Lif (Thorndike Press Large Print Nonfiction)

Let me know if you decide to take up the challenge too.

Love Katie x

 


Source: Google images

Source: Google images

Happy new year from the Davieses!

Blwyddyn Newydd Dda wrth yr Davieses!

(Paul, Didi & me) 

I would have loved to spend NYE with family, but for several reasons we couldn’t. Instead we enjoyed a quiet night just the three of us. Should I be counting my kitten? The day before, after a bit of internet searching I had found a couple of ideas to make our night fun, but low in energy expenditure. I saw a great idea on one forum, to eat healthy snacks instead of junk food, on the basis that you would wake up on 1st January feeling like you had already gotten back on track with a balanced diet after Christmas. I took this idea and ran with it. We had a yummy fruit platter, started a puzzle, played one of our new games (great Christmas present) and watched a film on iplayer. We spent the night doing things we enjoyed, without compromising my health. This meant that I woke up today, able to start 2013 the way I want it to continue, able to utilise my energy to work on my degree.

I was saddened to see many people on Facebook and Twitter writing negative messages about 2012. I know that for many people, there are a lot of bad memories associated with the last year, but I also know that most of these people had so many things to celebrate and be thankful for too. For P and I, the last year hasn’t always been easy, my health especially has deteriorated, which is both frustrating and de-moralising, but we would rather focus on all the fantastic things that happened over the last year, from the little things like the time we managed to go to the park, to the huge things, we got married. Of course, we have more to celebrate than a lot of people because we got married, one of the best things to happen to anyone.

Nothing like a night in with these two crazy cats

Nothing like a night in with these two crazy cats

I do believe the best is yet to come though, I don’t say that just because we’re young and I think I’ll get better, but because I know that God never provides a dull life. I can’t think of a single person I know who has a close relationship with God and a boring life. A life of adventure awaits all of us. Sometimes that adventure takes us through valleys, but even those awful times can have purpose when put into the hands of our Creator. Just writing these things makes me so excited for what lies ahead for me and Paul this year. Part of me is terrified, P is due to complete his degree this year, which throws up so many questions about how we will manage my health and stay financially afloat, but when I look in the Bible, I see that I have nothing to fear as long as I have God with me.

Many of people would have hated to spend NYE the way I did, but I felt perfectly contented. It’s easy to become disheartened because of all of things we don’t have,  but it’s difficult not to feel blessed when you count all of the things you do have. We should never take the basics like a roof over our head and food on the table for granted. The headlines of increasing unemployment and homelessness should teach us that.

At midnight, we tuned into BBC1 because I love fireworks. I might not be able to attend the Calennig celebrations in Cardiff, but I can see the wonderful firework display in London on my laptop. My favourites are the ones which follow the London Eye around in a circle. One year they used the Eye as a countdown clock for the last 60 seconds of the year. Amazing. With a big grin on my face, I kissed my husband at midnight, and thanked God for blessing me with such a wonderful partner for life.

Source: Google images

Source: Google images

Thank you so much for reading my blog in 2012, I hope you will continue to do so this year. I want to take Chronically Katie further this year, to raise even more awareness about invisible illnesses. This cause is more important than ever before, as the pages of the newspaper fill with articles persecuting patients and my inbox fills with desperate stories of those who are refused benefits and care. Please help me to help disspell the myths and misunderstandings so that fighters of invisible illnesses can get the care and support they both need and deserve.

Love Katie x


Day one in the Davies (or should that be NaNoWriMo) household, Katie is writing… That was supposed to be said in the Big Brother voice, or at least that’s how it sounded in my head.

My novel has got off to a good start so far. I have managed to bang out 3809 words today and it’s only 7:50pm. This is due largely to the fact that my health is very, very bad today. I know that sounds like an oxymoron, all shall be revealed.

Today is one of those days where I feel like I have lived a week in twelve hours. My health has been up and down all days, some of the time, like now, I feel ok, my legs are aching so I’m stuck in bed, but I am able to write, even though I cannot concentrate on reading or studying. At some points of the day however, I have been desperate to fall asleep because I just felt so sick. I don’t really know how to explain the extreme exhaustion, pain and sickness, except to say that if my mum were near, I would cry like a baby for her to come cuddle me when I feel like that.

I have been alone almost completely all day so to ward off any depression and negative thought cycles, I have just kept my novel on my mind. I haven’t been well enough to write all of the time, but I have been thinking of Ally all day long, meaning that when I can write, I have so much in my mind my fingers can’t type fast enough.

When I woke up this morning, I felt so far away from being able to focus on anything, let alone begin a novel, but I had prepared for this with two age-old writer’s tools:

Morning pages

I have heard many names for this, but essentially I just wrote about something other than what I was working on. Some writers, as I did, write journals to wake up their creative mind. It’s like sport, you can try just running, but you’re more likely to do a lot better if you stretch your muscles and focus your mind on the task ahead.The first thing you write at the beginning of the day is likely to be the worst thing you write that day so it’s a good idea to not put that in your novel.

Music

Background noise, providing it is not too loud can help a writer get into the scene or into their character’s head. I am writing about an angry, hurt, and rejected woman so I flicked through my iPod to find all the music I used to listen to as a teenager when I was feeling that way. This immediately puts me in the right place to think and feel the way Ally does. Certain songs remind us of certain feelings, it’s a good idea to harness this for my writing. On the other hand, if I listen to Ben Howard, I am going to feel calm and happy. I haven’t used it yet, but I also downloaded an the Ambiance app, which has a huge library of different sounds. I am planning to use these for certain scenes. So for example, if my character is taking a country walk, I can create a playlist of various wildlife sounds to help my mind picture what is happening.

 

One of the things I want to do this month is to use my intense novel writing to try out different writing techniques. Today I used journaling to warm up, perhaps I’ll stick with that for about a week before moving on to something different. I am doing the same with where I write. I was able to get out of the house to go to the library to write for an hour today, which was great because I have never tried writing there before. It went well, I was free from distractions and comfy on the new sofas. I’m not sure I’ll be able to get to the library every day for a week but I’ll try going there to write a few times, before moving on to a new venue. Obviously I tried writing in my bed too, but that doesn’t count as an experiment since I always write here (yup I’m there right now). By the end of this month I should have a good idea about my writing habits- where and how I work best.

Have you got any writing techniques or venues you use or have heard of that I could try out?

Love Katie x

P.s. My new blogging buddy Amelia is NaNoWriMo rebel because she is using this month to continue with her memoir about life with cerebral palsy.She is posting the whole thing on her blog day-by-day. I read the first installment today and felt positive I had to share it with you, it is a fantastic first draft. Check it out here.

You can find out more about my novel  and keep up to date with my progress on my NaNoWriMo page.


20121029-124750.jpg

I have decided to do something this November that I have been wanting to do for years. I have finally decided to take the plunge and do NaNoWriMo. If you’re not a writer you’re probably thinking I accidentally sat on my keyboard or if you’re English, you probably think that’s a Welsh word. Both are wrong, NaNoWriMo is an abbreviation of National Novel Writing Month. It began in America so is now actually international, but aside from that, the title is pretty self-explanatory. For the month of November, people pledge to write an entire novel (defined as 50,000 words). Most people try to write 2,000 words so that they have a little bit of manoeuvre room.

Whenever I think about what I am really about to attempt, I begin to wonder how the heck I am going to manage it, but I am absolutely determined to do this. I used to write everyday simply because I love it, and although I am still writing non-fiction regularly for this blog and my column, I really miss writing fiction. I just can’t seem to find the motivation for fiction anymore. As NaNoWriMo founder Chris Baty writes in No Plot? No Problem!,’the biggest thing separating people from their artistic ambitions is not a lack of talent. It’s the lack of a deadline.’ I don’t think my novel will be amazing, in fact most participators never actually read the novel they wrote. The reason I am doing this challenge is because I need to prove to myself that I can actually write everyday and produce a novel on a deadline, i.e. that I might actually have what it takes to be a writer.

I am not going to this blind-sided. I am making some preparations, I don’t just mean as in planning my novel and working on characters. I am reading Chris Baty’s book which I mentioned, reading lots of articles online and watching the NaNoWriMo youTube videos. I am planning to split my 2,000 daily words into either three or four writing sessions. I did a quick time check yesterday and it should take me about 15-20 minutes to write five hundred words, although this obviously depends on how well I get into the writing flow. Yes writer’s flow an actual thing, no matter how cheesy it sounds. I am hoping that by 9.30am each day I should have at least five hundred words down.

One of the great things about being in university is that I can also be apart of the NaNoWriMo group. I can make friends and get motivation and support. No one wants to be the first one in the group to quit…

I know this is still going to be a huge challenge but this is something I really want to achieve. I keep picturing how I will feel come the 1st December when despite my tiredness I will have written my first novel. I was talking to Paul earlier about what my undertaking this challenge will mean for him, and I realised quite how much I want to do this. If I end up giving up, you can expect one very unhappy post from me. So the less posts you see from me for the next month, the better you know my novel will be going. I’m off to make a visual board for my novel!

Love Katie x

Are any of you thinking of doing Nanowrimo too?


At the beginning of the trail you had to take a photo of yourself to identify your film, this is a copy of mine and Paul’s. Sorry the quality isn’t great.

When Paul and I returned home from honeymoon, there was one over-riding thing I was certain I wanted to do- lots and lots of new things. While stuck on the sofa during that week and a half I had a lot of time to think, and I knew that this year I wanted us not to just do the same things we did the year before. While we absolutely loved and got so much out of our cinema membership, that time has passed now. We still love going to the cinema but we don’t have the time (and I don’t have the energy) to go as often as we used to, and we’d rather do something more sociable these days.

The societies fair seemed a great place to start in finding a new hobby, we found the perfect match in the photography society. We have a good digital camera but we don’t have a swanky SLR and I doubt either of us will become photographers (although you never know), but it is something we can do together and have fun. We would both enjoy learning more about photography and developing new skills, especially when it comes to using the darkroom so we both joined up. So far we’ve thoroughly enjoyed all of the meetings/activities.

A fortnight ago we did a photo trail which involved using a disposable camera to take photos on seven themes. Once the photos were developed, they were judged and prizes handed out for the best in each theme. We decided to work on one camera together because we thought it would be easiest and make it more of a joint activity. P and I really enjoyed trekking around town, finding ways to creatively interpret the themes. We both said we would love to do it again, and it really opened up our mind to think about taking more creative photos. I’m seeing opportunities everywhere now.

It was such a beautiful day to take photos. This is just a quick snap I took of Cardiff Castle on my phone but the sky looks so blue in it.

We got our photos back last weekend, and unfortunately a lot of them didn’t come out (bad flash) but the ones which did come out we were quite proud of. On the day P was content to just come up with ideas and let me do all the photo taking, but I managed to persuade him to take a couple. The day of the social and prize-giving P wasn’t feeling too good at all, so it was doubly good when he came first in one of the categories. It was great that we worked together on the photos and shared ideas, but it was a big confidence boost for him that it was his photo which actually won. Of course he tried to share the credit (and the prize) with me because he’s always so kind, but I think the glory belongs to him and I am very proud of him. Needless to say that brought a smile to his face.

Even though the photo trail wasn’t an official date afternoon, it was probably the best afternoon we’ve spent together since we’ve been back home as newly weds. We’re building memories together as a couple, learning new skills, and making new friends. What more can a girl ask for from a society?

I’m curious to hear of the best dates you’ve been on, whether with friends or a partner. Please share with me via twitter (@Chronic_Katie) or in the comments box below.

Love Katie x


Cover of "The State of Me"

Image source: Amazon

One of my favourite books of all time is The State of M(available in the UK and the USA through Amazon). I am an avid reader, not the sort of person whose favourite book is the single book they’ve ever read, so you know that it’s well worth a read. It is a semi-autobiographical novel about a young woman in the 1980s who becomes ill with the mystery illness M.E. This is around the time my daddy got diagnosed so when I was reading about the hilarious/horrendous things people (including in the medical profession) came out with, I realised exactly what my dad had to face. Things are better now, but the reason that Nasim wrote this book (despite it almost killing her) is because things haven’t changed enough. We both write about our experiences for the same reason, to raise awareness about what living with chronic illnesses is really like.

 

I really would recommend reading it both for a bit of awareness about the condition, but also just because it’s a genuinely good book that I just couldn’t put down. The only health warnings I would put on it is that you need to remember that this is a book of its time so not all the facts are necessarily still true, and also that each patient’s symptoms can vary quite a lot.

 

I am bringing this up now because the author, Nasim Marie Jafry, has posted chapter 15 on her blog Velo Gubbed Legs (you can read it here). This chapter is actually different from the rest of the novel because it comes in the form of Q & As. It is very readable and I urge you to check it out. 

 

In case I haven’t given Nasim quite enough praise, you can also follow her on Twitter. She often tweets about things in the news about M.E./C.F.S. so if you’d like to be a bit more informed then she’s one of the best people to “follow”.

 

Love Katie x

 

p.s. Sadly I wasn’t paid to write this blog post- I just really like this book. Haha.

 


If you’re a regular reader of my blog then you will know that over the summer I was shortlisted for the Cosmopolitan Lifestyle Blog Award. Throughout August I bombarded you with pleas for you to vote for me. I thought it was about time I gave you an update on when the results will be announced.

Firstly, thank you so much to all of you who voted for me. I really do appreciate every single vote and all of the messages of support I received. It sounds cheesy but I still can’t quite believe I was shortlisted out of thousands of blogs and so many professional and interesting blogs in the same category as me. Mainly though, it is fantastic to have got more readers, who I never would have reached otherwise.

I was invited to an awards ceremony on Thursday 4th October, where the results will be announced. Unfortunately I won’t be able to attend because of the improper disabled access. Obviously this is a big disappointment for me. I would have loved to be in the swanky London hotel and make contacts with other writers. There is little point dwelling on spilled  milk though, the event was really the icing on the cake. Paul cheered me up by saying that this wouldn’t be my only chance at an event like this.

I did debate over whether to tell the truth about why I’m not attending the event, I decided it was best to stick to the policy of honesty. In fairness to Cosmo they believed that they did have disabled access and have done all they can to try to resolve the issue. As I’ve said before, I don’t get angry at the person/people who have failed to provide proper access, it’s really not something that crosses your mind until you have been in the position where you are affected (directly or indirectly) by bad or the lack of disabled access. Of course, this rational thought doesn’t completely deplete the disappointment I feel, but it does inspire Paul and I to keep raising awareness to reduce (even completely rid) the times like this so that others won’t have this problem. This is something which needs to change, it’s one of the reasons why people with disabilities and debilitating illnesses remain invisible in our society. The change begins with us taking every opportunity we can to raise awareness. There is a theory which I have a lot of sympathy with, the idea that society disables people because it prevents certain members of that society from having equal access. I won’t go into this too much now, it’s just food for thought, and perhaps I’ll write about it more another time.

Anyway, back to the main point, I am not sure when I will hear about the results but as soon as I know, you will know.

Keep your fingers crossed for me, it would be incredible to get the exposure of winning this award to raise awareness about life with chronic illness.

Love Katie x



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