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While I’ve been stuck in bed the past few months, I’ve spent a lot of time on the internet, reading blogs, watching YouTube and finding interesting people on Twitter. It’s struck me in the past week or so how many of the spoonies I “follow” online manage to achieve a lot, in spite of their illness. In some cases, they’ve used their illness to their advantage. As thoughts about this were swirling around my mind one night, I pondered how these women manage to do so much, when I seem to do so little. Was it because they weren’t as sick as me? Possibly, but that’s not the whole story. After much deliberation, I decided it was because they weren’t afraid to admit they had dreams and begin taking baby steps towards achieving them.

Failing yet again

When this academic year began, I had set my mind to focus on getting through my studies, it’s no surprise then that I fell into a depression when I got so sick again. Seeing weeks go by without my being able to study has been really difficult. I love learning, since I can remember, all I’ve wanted to do was go to university, and I love learning about politics. In a way, having tried so hard for so long to get through my degree only to keep “failing” at completing modules has just made me afraid to try anything else. I wouldn’t admit it out loud but my subconscious was saying, “why bother trying to do something you love? Your illness will only ruin it anyway.” I’ve been making plans but the majority of them have begun with the sentence, “when I’m well enough…”, which just isn’t happening.

Don’t misunderstand me, I haven’t given up on university, I will find a way to complete my degree, and I certainly haven’t given up the belief that I’ll get better, but I’m done waiting around for life to begin. That’s how Paul and I have felt, we’ve pushed ourselves to complete things, and life itself has been a real struggle for a long time, but when it comes to deepest desires, the things that mean the most to us, we’ve popped them on a shelf for “one day”. In a way, that’s allowing my illness to control us, the fear that we might only get one chance and that my illness will blow it for us, has prevented us from doing some things. There’s a certain amount of wisdom in that, but there’s been a lot of fear in that too.

Vintage pocket watch with open lid and chain on wooden surface

Making changes

This week we took the plunge and used some of our savings to book a holiday. The idea that we need to save for a rainy day has always been on our minds, and while that is generally a good principle to have, it’s made us afraid to spend any of our savings. Since we first became a couple and I got sick, we’ve been talking about going to Paris, and therefore, we’ve never wanted to spend our money on going anywhere else, because what if we can never save enough to go? Paris will still be there in future years when it is the right time for us to go, and I’m not going to believe that we’ll never get to go there if we go on holiday somewhere else. We know that we both need a holiday and we’d love to have a belated honeymoon. After all, lots of people generously gave us Euros at our wedding for that purpose. As we were chatting away about this, we both came to the realisation that although we’d love to go to a city and have an adventure, we’re both exhausted and what we really need is some time away somewhere hot, with a pool, and a beach. That’s what we did. We’ve booked a last minute holiday to Gran Canaria for a week. The fear that I felt when I clicked the little button to pay online was ridiculous, which made me all the more certain I was doing the right thing. It’s not like we’ve spent all of our savings on a crazy extravagant holiday that I obviously can’t manage. We booked something nice, albeit the cheapest place we could book, with disabled access. I don’t think I need to say any more to prove quite how unfounded my fears are.

Maspalomas, Gran Canaria

Having bitten the bullet on spending savings on a holiday, I’m determined to keep making progress on my dreams. I think putting all my eggs into the university basket was a mistake, and not one I’m going to repeat. What’s most important though is that I stop making my own contingency plans and start seeking God’s plan for my life. It might not be the most comfortable life, but I know it will be the most fulfilling life. Right now Paul and I are praying into our future and asking God where He wants us to step out in faith. Watch this space for more exciting adventures.

Love Katie x


Some of my more loyal readers will know that I write a fortnightly column for the student newspaper at my university. Up until now I haven’t shared any of those columns on here but since I’m not feeling up to writing a blog post right now I thought I would post my most recent one. It’s not available online so I’ve posted the text below for you. 

Gair Rhydd

Cat-astrophe

Last weekend I had an interesting time, and by interesting I mean expensive. I have a kitten named Didi, who is cute as a button and loyal as a dog. My husband got her for me as a surprise birthday present, and we have been putty in her paws since the day she first set foot in our flat.  Any pet owners among you will know that animals provide an endless supply of funny stories, just look at Marley and Me. If Didi had her own movie, last weekend would have been a great scene to add. Sadly, I don’t think I am about to make millions from a movie blockbuster about my kitten, at least she provided me with content for this week’s column I suppose.

                On Sunday morning when we woke to find her crying and howling incessantly, we were like panicked parents of a new born child. After changing her water, giving her food and doing everything else we could think of, we did that stupid thing you always see on American sitcoms. We started talking to her, asking her to show us what she wanted. If a baby can’t, I have no idea how a kitten would show their owner what they wanted. What can I say? Desperate times call for desperate measures.

                I decided it would be a good idea to seek advice so I turned to my parents, lifelong cat lovers and owners. Peculiarly, however, they didn’t answer the phone at ten to nine on a Sunday morning. Make of that what you will. I tried their mobile numbers, and for all of the times they’ve moaned about my not answering my phone, they didn’t flipping pick up the phone either. I was forced to turn to trusty Google in an attempt to learn to be a vet in a couple of minute by typing in various combinations of words. The problem was though that other than a lot of moaning, rolling around on the floor and a sore part on her tummy, Didi didn’t have any other symptoms, and all of the possible diagnoses included sickness, swollen stomach or a description of poop that didn’t match. Yup, checking for that one was a fun activity. In a moment of genius (read sarcasm) I decided to share my predicament with all of my Facebook friends in the hope that one of them might be able to save me an expensive trip to vets. In hindsight, I imagine most people didn’t want to read a description of my cat’s bowel movements that early in the day.

While I waited for cat lovers to share their wisdom on my wall, I continued to ring my parents. Finally they answered and confirmed what Paul and I had hoped to avoid- we had to take her to the vets. Sigh. If you have ever had pets you’ll know that it’s a costly enough affair going to vets, let alone when it’s out of hours. To make the whole thing seem more dramatic Didi provided a background soundtrack by continuing to cry in the most pathetic and heart wrenching tone. I hoped the couple upstairs with the baby couldn’t hear her. When we rang the emergency vet they told us that at the very least we would need to pay £80 to bring her in. Ouch. Add to that £5 each way for the taxi. Now I was really praying there wasn’t something seriously wrong with my little ball of fluff. To my shame, I kept imaging awful scenarios in which Didi would have to undergo some long and, more importantly, expensive treatment. For all of her wonderful traits, my kitty can be pretty naughty. I’ve never seen a kitten who attempts to digest so many random and potentially harmful things, I signed up for cat, not a Labrador!

Anyway, back to the story. By the time that we found a vet and the taxi arrived we were getting pretty worried, if there was an obstruction then we needed to get her to the vet as soon as possible. Since I wasn’t dressed (don’t judge me, it was a Sunday), Paul- that’s my husband- took her on his own. Unusually for Didi, she was completely quiet during the taxi ride, giving us all the more reason to worry. When the vet got her onto the table she was still completely silent. As she was examined, not a peep. The cat seemed totally fine. Paul was feeling pretty stupid at this point. When he explained how she was acting, the vet barely managed to stifle a laugh. Didi was absolutely fine, she was just on heat, that’s vet talk for saying she’s horny. That’s right, we paid £90 to find out our cat was trying to have sex. Great. The very worst that was wrong with her was cramps.

Keeping his head down, Paul paid the receptionist, and left as swiftly as he could. I had a bit more sympathy for the cat, not the horny part, but having had period pains I could understand the whimpering. I made a joke about giving her a hot water bottle and some chocolate that didn’t even break a smirk on to Paul’s face. I think it’s safe to say the next time he hands money over to a vet it will be to get Didi spayed. While I write this she continues to howl in the hope of encountering a male lover.

So, what is the moral of this tale of woe? When a cat is horny, you’re going to know about it. 

So, what did you think? Just in case you were curious ‘Gair Rhydd’ (the name of the paper I write for) means ‘free word’ in Welsh.

Love Katie x

p.s. The title of this blog post is the name of my column.


Some of my more loyal readers will know that I write a fortnightly column for the student newspaper at my university. Up until now I haven’t shared any of those columns on here but since I’m not feeling up to writing a blog post right now I thought I would post my most recent one. It’s not available online so I’ve posted the text below for you. 

Gair Rhydd

Cat-astrophe

Last weekend I had an interesting time, and by interesting I mean expensive. I have a kitten named Didi, who is cute as a button and loyal as a dog. My husband got her for me as a surprise birthday present, and we have been putty in her paws since the day she first set foot in our flat.  Any pet owners among you will know that animals provide an endless supply of funny stories, just look at Marley and Me. If Didi had her own movie, last weekend would have been a great scene to add. Sadly, I don’t think I am about to make millions from a movie blockbuster about my kitten, at least she provided me with content for this week’s column I suppose.

                On Sunday morning when we woke to find her crying and howling incessantly, we were like panicked parents of a new born child. After changing her water, giving her food and doing everything else we could think of, we did that stupid thing you always see on American sitcoms. We started talking to her, asking her to show us what she wanted. If a baby can’t, I have no idea how a kitten would show their owner what they wanted. What can I say? Desperate times call for desperate measures.

                I decided it would be a good idea to seek advice so I turned to my parents, lifelong cat lovers and owners. Peculiarly, however, they didn’t answer the phone at ten to nine on a Sunday morning. Make of that what you will. I tried their mobile numbers, and for all of the times they’ve moaned about my not answering my phone, they didn’t flipping pick up the phone either. I was forced to turn to trusty Google in an attempt to learn to be a vet in a couple of minute by typing in various combinations of words. The problem was though that other than a lot of moaning, rolling around on the floor and a sore part on her tummy, Didi didn’t have any other symptoms, and all of the possible diagnoses included sickness, swollen stomach or a description of poop that didn’t match. Yup, checking for that one was a fun activity. In a moment of genius (read sarcasm) I decided to share my predicament with all of my Facebook friends in the hope that one of them might be able to save me an expensive trip to vets. In hindsight, I imagine most people didn’t want to read a description of my cat’s bowel movements that early in the day.

While I waited for cat lovers to share their wisdom on my wall, I continued to ring my parents. Finally they answered and confirmed what Paul and I had hoped to avoid- we had to take her to the vets. Sigh. If you have ever had pets you’ll know that it’s a costly enough affair going to vets, let alone when it’s out of hours. To make the whole thing seem more dramatic Didi provided a background soundtrack by continuing to cry in the most pathetic and heart wrenching tone. I hoped the couple upstairs with the baby couldn’t hear her. When we rang the emergency vet they told us that at the very least we would need to pay £80 to bring her in. Ouch. Add to that £5 each way for the taxi. Now I was really praying there wasn’t something seriously wrong with my little ball of fluff. To my shame, I kept imaging awful scenarios in which Didi would have to undergo some long and, more importantly, expensive treatment. For all of her wonderful traits, my kitty can be pretty naughty. I’ve never seen a kitten who attempts to digest so many random and potentially harmful things, I signed up for cat, not a Labrador!

Anyway, back to the story. By the time that we found a vet and the taxi arrived we were getting pretty worried, if there was an obstruction then we needed to get her to the vet as soon as possible. Since I wasn’t dressed (don’t judge me, it was a Sunday), Paul- that’s my husband- took her on his own. Unusually for Didi, she was completely quiet during the taxi ride, giving us all the more reason to worry. When the vet got her onto the table she was still completely silent. As she was examined, not a peep. The cat seemed totally fine. Paul was feeling pretty stupid at this point. When he explained how she was acting, the vet barely managed to stifle a laugh. Didi was absolutely fine, she was just on heat, that’s vet talk for saying she’s horny. That’s right, we paid £90 to find out our cat was trying to have sex. Great. The very worst that was wrong with her was cramps.

Keeping his head down, Paul paid the receptionist, and left as swiftly as he could. I had a bit more sympathy for the cat, not the horny part, but having had period pains I could understand the whimpering. I made a joke about giving her a hot water bottle and some chocolate that didn’t even break a smirk on to Paul’s face. I think it’s safe to say the next time he hands money over to a vet it will be to get Didi spayed. While I write this she continues to howl in the hope of encountering a male lover.

So, what is the moral of this tale of woe? When a cat is horny, you’re going to know about it. 

So, what did you think? Just in case you were curious ‘Gair Rhydd’ (the name of the paper I write for) means ‘free word’ in Welsh.

Love Katie x

p.s. The title of this blog post is the name of my column.


Oh boy do I have a lot to tell you! I have quite a few blog posts stored up in the tattered notebook in my mind which I hope I can transfer onto screen in the coming week. This post, however, as the name suggests, will focus on an extraordinary experience I had this week.

This week I went back to lectures after the long exam period (there’s another there). As I’ve mentioned countless times before on here, I love studying. I am not like other students who hate going to lectures, I excitedly try ad soak up everything my lecturer has to say. Yes, I am a geek.

I had to spend all Sunday and most of Saturday in bed so I thought my body would be eager to get up and about by Monday morning. No deal. I woke up Monday morning feeling awful. Paul helped me struggle through breakfast and getting dressed, feeding me my favourite cereal and coffee. He is amazing, what a hero.  when he could see that it was becoming more and more evident that I was not going to be able to drive my mobility scooter to university (bare in mind we live less than 4 minutes away , I’ve timed it), he did what we should have done in the first place – prayed. this brought a smile to my face. I know that I have a God who always has my best interests at heart. I find it incredible that I could trust my Heavenly Father completely and yet forget to put my day in his hands.

Anyway back to the story. Paul placed his hands on me and prayed that I would not only manage to get to my lecture but also that I would be able to concentrate on what the lecturer was saying. Just over an hour later he picked me up from my first lecture of the day. I had a giant smile on my face.

“It was so good, I loved it. I felt fine and could take it all in. I think I took really good notes too” I told P, a bit too loudly.

I went to two lectures yesterday, one today and I managed 40 minutes of work this morning too. This is incredible. The cynics among you might think that I am just experiencing a placebo effect or something. I am not saying I am completely healed, I still need my painkillers, and I needed a nap yesterday too, but I cannot think of another word to describe what is happening other then ‘miracle’. I have not even been able to mange 10 minutes of concentration for over a month, I’ve tried so many times and now all of a sudden I can attend lectures and read journal articles. Amazing.

I don’t know whether this is a beginning of a complete healing or whether this partial healing will only last a set amount of time. I know that  I have a God who I am trust and if I put my life in his hands will use all the pain, exhaustion, frustration and tear for something great.

I decided to share this experience on here to bring you hope. I know many of my readers are sick themselves or maybe you’re in another type of situation that you need breakthrough in. I know this post might make you uncomfortable, there’s a lot of pain and emotion associated with healing. I know because I’ve been and am still going through it myself. The disappointment of not being healed can make you want to give up. It seems to take up too much energy to keep trusting and hoping. If we stop believing though, we give in, our sickness wins.

Bible says we are more than conquerors. If you put your trust in God, He might not take your life where you want it to go or might not intervene in the way you want Him to but you can be certain that His plan is the best plan. That’s why, even though I want to be well and healthy, I know that I am in the right place, I have complete faith in him.

If this answer to Paul’s prayer has taught me anything its that I need to pray every morning and put my day in his hands.

Love Katie x


Source: Google images

Source: Google images

Happy new year from the Davieses!

Blwyddyn Newydd Dda wrth yr Davieses!

(Paul, Didi & me) 

I would have loved to spend NYE with family, but for several reasons we couldn’t. Instead we enjoyed a quiet night just the three of us. Should I be counting my kitten? The day before, after a bit of internet searching I had found a couple of ideas to make our night fun, but low in energy expenditure. I saw a great idea on one forum, to eat healthy snacks instead of junk food, on the basis that you would wake up on 1st January feeling like you had already gotten back on track with a balanced diet after Christmas. I took this idea and ran with it. We had a yummy fruit platter, started a puzzle, played one of our new games (great Christmas present) and watched a film on iplayer. We spent the night doing things we enjoyed, without compromising my health. This meant that I woke up today, able to start 2013 the way I want it to continue, able to utilise my energy to work on my degree.

I was saddened to see many people on Facebook and Twitter writing negative messages about 2012. I know that for many people, there are a lot of bad memories associated with the last year, but I also know that most of these people had so many things to celebrate and be thankful for too. For P and I, the last year hasn’t always been easy, my health especially has deteriorated, which is both frustrating and de-moralising, but we would rather focus on all the fantastic things that happened over the last year, from the little things like the time we managed to go to the park, to the huge things, we got married. Of course, we have more to celebrate than a lot of people because we got married, one of the best things to happen to anyone.

Nothing like a night in with these two crazy cats

Nothing like a night in with these two crazy cats

I do believe the best is yet to come though, I don’t say that just because we’re young and I think I’ll get better, but because I know that God never provides a dull life. I can’t think of a single person I know who has a close relationship with God and a boring life. A life of adventure awaits all of us. Sometimes that adventure takes us through valleys, but even those awful times can have purpose when put into the hands of our Creator. Just writing these things makes me so excited for what lies ahead for me and Paul this year. Part of me is terrified, P is due to complete his degree this year, which throws up so many questions about how we will manage my health and stay financially afloat, but when I look in the Bible, I see that I have nothing to fear as long as I have God with me.

Many of people would have hated to spend NYE the way I did, but I felt perfectly contented. It’s easy to become disheartened because of all of things we don’t have,  but it’s difficult not to feel blessed when you count all of the things you do have. We should never take the basics like a roof over our head and food on the table for granted. The headlines of increasing unemployment and homelessness should teach us that.

At midnight, we tuned into BBC1 because I love fireworks. I might not be able to attend the Calennig celebrations in Cardiff, but I can see the wonderful firework display in London on my laptop. My favourites are the ones which follow the London Eye around in a circle. One year they used the Eye as a countdown clock for the last 60 seconds of the year. Amazing. With a big grin on my face, I kissed my husband at midnight, and thanked God for blessing me with such a wonderful partner for life.

Source: Google images

Source: Google images

Thank you so much for reading my blog in 2012, I hope you will continue to do so this year. I want to take Chronically Katie further this year, to raise even more awareness about invisible illnesses. This cause is more important than ever before, as the pages of the newspaper fill with articles persecuting patients and my inbox fills with desperate stories of those who are refused benefits and care. Please help me to help disspell the myths and misunderstandings so that fighters of invisible illnesses can get the care and support they both need and deserve.

Love Katie x


 November has very much been an emotional and physical rollacoaster. I feel very lucky to have a fantastic husband and some great friends who were willing to patiently ride it with me.

Regular readers will know that I participated in National Novel Writing Month last month, I am sure you will all be pleased to hear that I completed my novel! I am very proud of my accomplishment, it makes me realise how much I can achieve with my writing with the right amount of dedication. I am very thankful to my friends who sent me messages of encouragement and to my husband who put my laptop in front of me even when I resisted.

It was very difficult for me to write 50,000 words in such a short space of time. ..

This is as far as I have got in writing an update blog post. I am seriously struggling with motivation at the moment. My body is exhausted and every time I do something I have to stay in bed for days on end to recover. That doesn’t exactly inspire me to go places or work hard.

I have so much to be thankful for, the last two weeks in particular have been jam packed with treats, presents and wonderful events, and yet I do not want to get out of bed. I should be on top of the world right now. I don’t know completely whether it’s my body or my depression. I certainly struggle when I do get out of bed, not just struggled, I have to really fight to get up but I’m not doing anything while I’m in bed either. My pain levels are really bad and I’m not sleeping much, but I don’t feel like I want to look after myself at all, I would happily hide away from the world. Perhaps there isn’t one problem, it’s most likely to be a combination of both depression and sickness. Usually I would fight these kinds of emotions and thoughts by throwing myself into social events and university work, but my physical illness is holding me back. What is clear is that I need to push past my physical problems if I want to stay on track with my university course.

Even though I barely began my ‘catch up’ post I wanted to put it up to show you where I am right now. A bit lost and struggling to work on anything, least of all my university work, which I am desperately behind with. I will continue to attempt to force myself out of this though, I know that God is close, and will bring me through this deep valley.

Love Katie x

 


20121029-124750.jpg

I have decided to do something this November that I have been wanting to do for years. I have finally decided to take the plunge and do NaNoWriMo. If you’re not a writer you’re probably thinking I accidentally sat on my keyboard or if you’re English, you probably think that’s a Welsh word. Both are wrong, NaNoWriMo is an abbreviation of National Novel Writing Month. It began in America so is now actually international, but aside from that, the title is pretty self-explanatory. For the month of November, people pledge to write an entire novel (defined as 50,000 words). Most people try to write 2,000 words so that they have a little bit of manoeuvre room.

Whenever I think about what I am really about to attempt, I begin to wonder how the heck I am going to manage it, but I am absolutely determined to do this. I used to write everyday simply because I love it, and although I am still writing non-fiction regularly for this blog and my column, I really miss writing fiction. I just can’t seem to find the motivation for fiction anymore. As NaNoWriMo founder Chris Baty writes in No Plot? No Problem!,’the biggest thing separating people from their artistic ambitions is not a lack of talent. It’s the lack of a deadline.’ I don’t think my novel will be amazing, in fact most participators never actually read the novel they wrote. The reason I am doing this challenge is because I need to prove to myself that I can actually write everyday and produce a novel on a deadline, i.e. that I might actually have what it takes to be a writer.

I am not going to this blind-sided. I am making some preparations, I don’t just mean as in planning my novel and working on characters. I am reading Chris Baty’s book which I mentioned, reading lots of articles online and watching the NaNoWriMo youTube videos. I am planning to split my 2,000 daily words into either three or four writing sessions. I did a quick time check yesterday and it should take me about 15-20 minutes to write five hundred words, although this obviously depends on how well I get into the writing flow. Yes writer’s flow an actual thing, no matter how cheesy it sounds. I am hoping that by 9.30am each day I should have at least five hundred words down.

One of the great things about being in university is that I can also be apart of the NaNoWriMo group. I can make friends and get motivation and support. No one wants to be the first one in the group to quit…

I know this is still going to be a huge challenge but this is something I really want to achieve. I keep picturing how I will feel come the 1st December when despite my tiredness I will have written my first novel. I was talking to Paul earlier about what my undertaking this challenge will mean for him, and I realised quite how much I want to do this. If I end up giving up, you can expect one very unhappy post from me. So the less posts you see from me for the next month, the better you know my novel will be going. I’m off to make a visual board for my novel!

Love Katie x

Are any of you thinking of doing Nanowrimo too?


At the beginning of the trail you had to take a photo of yourself to identify your film, this is a copy of mine and Paul’s. Sorry the quality isn’t great.

When Paul and I returned home from honeymoon, there was one over-riding thing I was certain I wanted to do- lots and lots of new things. While stuck on the sofa during that week and a half I had a lot of time to think, and I knew that this year I wanted us not to just do the same things we did the year before. While we absolutely loved and got so much out of our cinema membership, that time has passed now. We still love going to the cinema but we don’t have the time (and I don’t have the energy) to go as often as we used to, and we’d rather do something more sociable these days.

The societies fair seemed a great place to start in finding a new hobby, we found the perfect match in the photography society. We have a good digital camera but we don’t have a swanky SLR and I doubt either of us will become photographers (although you never know), but it is something we can do together and have fun. We would both enjoy learning more about photography and developing new skills, especially when it comes to using the darkroom so we both joined up. So far we’ve thoroughly enjoyed all of the meetings/activities.

A fortnight ago we did a photo trail which involved using a disposable camera to take photos on seven themes. Once the photos were developed, they were judged and prizes handed out for the best in each theme. We decided to work on one camera together because we thought it would be easiest and make it more of a joint activity. P and I really enjoyed trekking around town, finding ways to creatively interpret the themes. We both said we would love to do it again, and it really opened up our mind to think about taking more creative photos. I’m seeing opportunities everywhere now.

It was such a beautiful day to take photos. This is just a quick snap I took of Cardiff Castle on my phone but the sky looks so blue in it.

We got our photos back last weekend, and unfortunately a lot of them didn’t come out (bad flash) but the ones which did come out we were quite proud of. On the day P was content to just come up with ideas and let me do all the photo taking, but I managed to persuade him to take a couple. The day of the social and prize-giving P wasn’t feeling too good at all, so it was doubly good when he came first in one of the categories. It was great that we worked together on the photos and shared ideas, but it was a big confidence boost for him that it was his photo which actually won. Of course he tried to share the credit (and the prize) with me because he’s always so kind, but I think the glory belongs to him and I am very proud of him. Needless to say that brought a smile to his face.

Even though the photo trail wasn’t an official date afternoon, it was probably the best afternoon we’ve spent together since we’ve been back home as newly weds. We’re building memories together as a couple, learning new skills, and making new friends. What more can a girl ask for from a society?

I’m curious to hear of the best dates you’ve been on, whether with friends or a partner. Please share with me via twitter (@Chronic_Katie) or in the comments box below.

Love Katie x


Well you’ve probably been wondering where the heck my blog post about my wedding is. The reason there has been a lack of posts on here is that I had a REALLY bad couple of days. Just as I was getting ready to write a post about the progress I’ve made since I began writing this blog, there was a another whack of a “bad patch”.

During these few days I was listening to a preach online from my Church about personal progress. Chris Cooke (senior leader at Freedom Church) talked about the importance of momentum, to keep taking each little step because it is so much harder to begin again once you’ve stopped. I am climbing the hill of recovery into full health and I can’t stop because of a few days.
Yesterday was the first day of lectures and I felt so ill that I just wanted to stay in bed. Those horrid thoughts of just staying in bed forever so that I don’t have to go through the pain and exhaustion came, but I didn’t want to give up my progress. I reminded myself of why I am trying to do my degree, why Paul has given so much so that I can get to university and learn about politics, and I forced myself to go.
I don’t want anyone to misread this as me saying that staying in bed is a weak option and that if everyone who suffered from CFS and Fibromyalgia just pushed themselves they could get out of bed. The trick to recovery from chronic illnesses is to know when to give in and when to push.  I literally didn’t get out of bed, except to go to the toilet on Saturday and Sunday. Those days I needed to stay in bed and rest, my body was in a really bad state and needed a lot of sleep. Even on Monday I still did sleep and rest a lot, but I pushed my body to leave the house for two hours. That’s a smart thing to do when you can feel that your body is ready to begin the fight.
I don’t know whether any of this makes sense to someone who hasn’t suffered from these illnesses, but what I’m trying to say is that I’m in a new phase. I gave my body about four months of rest and now it is ready to begin the steady (and sometimes steep) incline back to health. My daddy was talking to me about this last week (you might remember that my dad too has a lot of health problems) and he reminded me that I won’t glide back into health easily but that I’ll have to fight for it. It’s going to hurt some days, and I’m going to have set backs, but I know that eventually my days where I “win” like yesterday will begin to increase and increase, and the “bad” days will lessen.

I have good reason for this solid conviction of recovery. I have had a lot of prayer and have had two very strong prophecies of health in my future. I know that the people who gave me these prophecies wouldn’t pass on these words from God unless they had real conviction of their truth. Something so personal and sensitive isn’t taken lightly. It can be hard to believe for something like that when you’re in a valley of pain, but faith is seeing beyond your current circumstance and I do believe I will be healed. I don’t think it will be a miraculous healing (although I’m not ruling it out), I think that as I grow into the woman (and Paul grows into the man) God intends me to be, so too will my health be released for the exciting adventure God has for me and my husband.
Cue Eye of the Tiger….

Love Katie x

p.s. If you want the preach I mentioned (which is called The Great Locomotive: Hurtling Along the Edge of Chaos), you listen to it as a podcast here.


A good way to summarise my time at home so far would be to quote the famous words from a song from the show Annie:

Just thinkin’ about tomorrow
Clears away the cobwebs,
And the sorrow
‘Til there’s none!
When I’m stuck with a day
That’s gray,
And lonely,
I just stick out my chin
And Grin,
And Say,
Oh
The sun’ll come out
Tomorrow
So ya gotta hang on
‘Til tomorrow

No I’m not referring to the weather, but my ability to work for my exam I intend to take later this month. Despite the weeks of rest I’ve had since I began writing this blog, I have only been able to work on a few rare days. The suitcase of notes and books I brought here with me sits gaining dust, and I find myself still saying, “tomorrow I’ll be able to begin revising”. My exam is now only two weeks away, and I am at the height of my frustration.

I know many people would be quick to advise and criticise me. The usual remarks are that I should have gone out less or that I should try harder. I still find it unbelievable that after all I have achieved academically people still feel they know better, having had no experience of this illness. Concentrating on degree level work is much more demanding than the concentration required to write this blog post or watch a film. And, in regards to rest, yes, when I do go out I do get very unwell and have to rest, but in case it hasn’t become plainly obvious, M.E. does improve on rest. I choose to have some semblence of a life, if going out or seeing people once or twice a week is too much then I can wave goodbye to my sanity. It’s not as though I’ve gone out to clubs or attended endless parties, excluding that one or two weeks where I had a packed diary, I have barely done anything socially. The bed rock of the issue is that my illness does not improve by my resting. It reduces certain symptoms when I rest and it makes me rest, but it’s impossible for a long sleep to improve my condition, except if I’m recovering from having over done it. 

M.E. or CFS is caused by the body’s inability to rest properly, that’s a medical fact. My body never has a good night’s sleep. All I can do is wait for my body to improve and do the best I can to help facilitate that through pacing myself. I am always dumbfounded when I meet people who think that they could possibly have the answer that no research or doctor has ever thought of- trying to do something, perhaps begin with dusting or hoovering. As if I don’t want to do that every single day, the desire I have to walk when I wake up in the morning is so strong. Sometimes that advice is given out of genuine concern, but often it is given out of the idea that there really is nothing wrong with me. When you drill down to the fundamentals, it is arrogance that makes a person think they could know better than my doctor, and that is their issue, not mine. I try to ignore these kind of people, I am trying to grow thicker skinned.

But, back to the real point of this blog post. I will continue to be always waiting on tomorrow. Doing my best to help my body today, in the hope that tomorrow will bring more energy.

Love Katie x

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