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If you’ve been a reader of this blog since the ink first hit the screen then you will know that I’m a big fan of Carers’ Week. I like to use the week to not only raise awareness about the struggles carers face here in the UK and elsewhere, but also to celebrate all that they do, kind of like mothers’ day.

This year Carers’ Week has fallen on the same week as Paul’s birthday, so I decided to pick a day towards the end of the week to treat him. I plan to shower him with gifts and then take him to the cinema, one of our favourite things to do.

I wrote much more on the subject last year, including ways that you could show love and support to a carer you know, not just this week, but at any time. You can read that post by clicking here.

More importantly, Paul is now a blogger for The Huffington Post, and has written a raw, honest post about his life as both a student and a full-time carer. The post was even featured as an editorial pick on the day of its release! You can read that post by clicking here.

If you know a carer, I hope that you will do something to make them feel special and loved this week. It’s far from easy having to be so selfless all of the time and to have to carry so much responsibility, especially for young people. It would mean so much to both Paul and I if you left a comment below wishing Paul a happy Carers’ Week.

How do you show your gratitude towards your carer?

Love Katie x

P.s. Don’t forget to tag your photos, blogs, and tweets of accomplishments with #CKmarathon, you might even get a shout out from me.


Our dates aren't always exciting & adventurous but what matters is that we spend quality time together.

Our dates aren’t always exciting & adventurous but what matters is that we spend quality time together.

So today is Friday which in the Davies household means date day! Every week Paul and I set aside at least one hour to do something fun together. We don’t have to spend the whole day together, but since it also our day of rest we can’t do *anything* work related. That’s not really relevant at the moment because we’re both to sick to do any university work anyway. Knowing that this is the one day we don’t have to feel guilty about not working though is a big bonus, it’s really brought back that Friday feeling we used to feel as a kids.

Today I woke up feeling awful, and I mean really awful. My arms were aching a lot and I felt completely exhausted. This isn’t really different from how I’ve been feeling for the last fortnight or so, but it just felt a bit worse this morning. As usual, I have no idea why since all I have done for the last week is rest. Anyway, my health having dictated that going out was off the cards, Paul and I agreed to revert to our secondary plan, a mug decorating date in our lounge. The plan is to get all of our duvets and pillows and make a big comfy fort to get me out of bed and then use Sharpies to decorate a mug to give to each other.

Date 1 (66)

Even though this is a slouchy, not much effort, low energy kind of date purposefully, I still want to make an effort to look nice, in the same way I would have when Paul and I first started dating. Up until recently, I would have known that doing my hair and make up was off the cards and so would have just moped about my appearance. Now, however, I have begun to develop a low energy and pain make up routine that I can do even when I have bad days like this. Since writing out the routine and taking photos would not only take a long time but a large amount of energy I’m going to make a YouTube video instead. It will be uploaded to my YouTube channel soon so make sure you check back there, or even better subscribe so you definitely won’t miss it (never miss an opportunity for a plug.

I don’t think this video is only relevant to sick people though, I don’t see why a normal, healthy person can’t check out this video and use the routine when they’ve only got 10 minutes until they need to leave for work and they look a mess. Or, for someone, I’m especially thinking of young girls, who don’t need to wear much make up.

The whole routine only takes about 5 minutes but I’ve been doing a step, resting for a while, doing another step, etc, so that by the time it’s date time I’m not exhausted. What would you know I even managed to write this blog post. I wonder if it’s something they put in bronzer…

Love Katie x

If there’s anything you’d particularly like to see either here on my blog or over at my YouTube channel, then pop a comment below. I’ve already had some great suggestions but I’m always open to new ideas. Remember, it doesn’t have to be beauty related!

I’m still working on the new layout, but I’m getting there, don’t you think?

 


Milgi collage 2

Last night I got to leave my bedroom to see an actual person. Okay I live with my husband and it hadn’t been that long since I left the house, but somehow not seeing my friends for weeks made me feel like I’d been in hibernation. Last night P and I  went to one of our favourite cafe/restaurant/bars, a place name Milgi and my tummy is still full. I am yet to find a single person who has been to Milgi and not loved it. The place is a treasure trove of art, creativity, and interior design genius. I always forget quite how much I love the place, and how happy being there makes me. I was annoyed with myself for forgetting to take my digital camera. I wish I could have taken some photos of my favourite parts of the place. Instead I was stuck with my phone camera, and since I am still using my iPhone 3GS I don’t have a flash. Oh well guess it means I’ll have to go back soon, eh?

Aside from the pretty interior and lovely atmosphere, Milgi has some of the best food I have ever tasted. The restaurant is completely vegetarian, something P and I would have turned our noses up a couple of years ago. I wouldn’t have imagined P loving bean burgers when we first met. The place has changed the way we look at vegetarian meals though. Last night I tucked into one of their legendary nut roasts, and for pudding cinnamon doughnuts with chocolate dipping sauce and cream. All made on the premises.

Enough about my love of food though and more about the person we had dinner with. I’ve mentioned M a couple of times on here, but probably not enough considering she is one of our best friends. She’s the sort of person who you always makes you laugh until your sides hurt. The night as a whole then was definitely worth braving the snow for (which Edith, my mobility scooter, handled wonderfully by the way) and the whole day it has taken me to recover. The night refreshed me a little so I feel a bit more motivated to get on with some university work, that’s a story for another post.

Love Katie x

 

Mobility Waterproof Scooter Storage Cover


Source: Google images

Source: Google images

Happy new year from the Davieses!

Blwyddyn Newydd Dda wrth yr Davieses!

(Paul, Didi & me) 

I would have loved to spend NYE with family, but for several reasons we couldn’t. Instead we enjoyed a quiet night just the three of us. Should I be counting my kitten? The day before, after a bit of internet searching I had found a couple of ideas to make our night fun, but low in energy expenditure. I saw a great idea on one forum, to eat healthy snacks instead of junk food, on the basis that you would wake up on 1st January feeling like you had already gotten back on track with a balanced diet after Christmas. I took this idea and ran with it. We had a yummy fruit platter, started a puzzle, played one of our new games (great Christmas present) and watched a film on iplayer. We spent the night doing things we enjoyed, without compromising my health. This meant that I woke up today, able to start 2013 the way I want it to continue, able to utilise my energy to work on my degree.

I was saddened to see many people on Facebook and Twitter writing negative messages about 2012. I know that for many people, there are a lot of bad memories associated with the last year, but I also know that most of these people had so many things to celebrate and be thankful for too. For P and I, the last year hasn’t always been easy, my health especially has deteriorated, which is both frustrating and de-moralising, but we would rather focus on all the fantastic things that happened over the last year, from the little things like the time we managed to go to the park, to the huge things, we got married. Of course, we have more to celebrate than a lot of people because we got married, one of the best things to happen to anyone.

Nothing like a night in with these two crazy cats

Nothing like a night in with these two crazy cats

I do believe the best is yet to come though, I don’t say that just because we’re young and I think I’ll get better, but because I know that God never provides a dull life. I can’t think of a single person I know who has a close relationship with God and a boring life. A life of adventure awaits all of us. Sometimes that adventure takes us through valleys, but even those awful times can have purpose when put into the hands of our Creator. Just writing these things makes me so excited for what lies ahead for me and Paul this year. Part of me is terrified, P is due to complete his degree this year, which throws up so many questions about how we will manage my health and stay financially afloat, but when I look in the Bible, I see that I have nothing to fear as long as I have God with me.

Many of people would have hated to spend NYE the way I did, but I felt perfectly contented. It’s easy to become disheartened because of all of things we don’t have,  but it’s difficult not to feel blessed when you count all of the things you do have. We should never take the basics like a roof over our head and food on the table for granted. The headlines of increasing unemployment and homelessness should teach us that.

At midnight, we tuned into BBC1 because I love fireworks. I might not be able to attend the Calennig celebrations in Cardiff, but I can see the wonderful firework display in London on my laptop. My favourites are the ones which follow the London Eye around in a circle. One year they used the Eye as a countdown clock for the last 60 seconds of the year. Amazing. With a big grin on my face, I kissed my husband at midnight, and thanked God for blessing me with such a wonderful partner for life.

Source: Google images

Source: Google images

Thank you so much for reading my blog in 2012, I hope you will continue to do so this year. I want to take Chronically Katie further this year, to raise even more awareness about invisible illnesses. This cause is more important than ever before, as the pages of the newspaper fill with articles persecuting patients and my inbox fills with desperate stories of those who are refused benefits and care. Please help me to help disspell the myths and misunderstandings so that fighters of invisible illnesses can get the care and support they both need and deserve.

Love Katie x



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