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While I’ve been stuck in bed the past few months, I’ve spent a lot of time on the internet, reading blogs, watching YouTube and finding interesting people on Twitter. It’s struck me in the past week or so how many of the spoonies I “follow” online manage to achieve a lot, in spite of their illness. In some cases, they’ve used their illness to their advantage. As thoughts about this were swirling around my mind one night, I pondered how these women manage to do so much, when I seem to do so little. Was it because they weren’t as sick as me? Possibly, but that’s not the whole story. After much deliberation, I decided it was because they weren’t afraid to admit they had dreams and begin taking baby steps towards achieving them.

Failing yet again

When this academic year began, I had set my mind to focus on getting through my studies, it’s no surprise then that I fell into a depression when I got so sick again. Seeing weeks go by without my being able to study has been really difficult. I love learning, since I can remember, all I’ve wanted to do was go to university, and I love learning about politics. In a way, having tried so hard for so long to get through my degree only to keep “failing” at completing modules has just made me afraid to try anything else. I wouldn’t admit it out loud but my subconscious was saying, “why bother trying to do something you love? Your illness will only ruin it anyway.” I’ve been making plans but the majority of them have begun with the sentence, “when I’m well enough…”, which just isn’t happening.

Don’t misunderstand me, I haven’t given up on university, I will find a way to complete my degree, and I certainly haven’t given up the belief that I’ll get better, but I’m done waiting around for life to begin. That’s how Paul and I have felt, we’ve pushed ourselves to complete things, and life itself has been a real struggle for a long time, but when it comes to deepest desires, the things that mean the most to us, we’ve popped them on a shelf for “one day”. In a way, that’s allowing my illness to control us, the fear that we might only get one chance and that my illness will blow it for us, has prevented us from doing some things. There’s a certain amount of wisdom in that, but there’s been a lot of fear in that too.

Vintage pocket watch with open lid and chain on wooden surface

Making changes

This week we took the plunge and used some of our savings to book a holiday. The idea that we need to save for a rainy day has always been on our minds, and while that is generally a good principle to have, it’s made us afraid to spend any of our savings. Since we first became a couple and I got sick, we’ve been talking about going to Paris, and therefore, we’ve never wanted to spend our money on going anywhere else, because what if we can never save enough to go? Paris will still be there in future years when it is the right time for us to go, and I’m not going to believe that we’ll never get to go there if we go on holiday somewhere else. We know that we both need a holiday and we’d love to have a belated honeymoon. After all, lots of people generously gave us Euros at our wedding for that purpose. As we were chatting away about this, we both came to the realisation that although we’d love to go to a city and have an adventure, we’re both exhausted and what we really need is some time away somewhere hot, with a pool, and a beach. That’s what we did. We’ve booked a last minute holiday to Gran Canaria for a week. The fear that I felt when I clicked the little button to pay online was ridiculous, which made me all the more certain I was doing the right thing. It’s not like we’ve spent all of our savings on a crazy extravagant holiday that I obviously can’t manage. We booked something nice, albeit the cheapest place we could book, with disabled access. I don’t think I need to say any more to prove quite how unfounded my fears are.

Maspalomas, Gran Canaria

Having bitten the bullet on spending savings on a holiday, I’m determined to keep making progress on my dreams. I think putting all my eggs into the university basket was a mistake, and not one I’m going to repeat. What’s most important though is that I stop making my own contingency plans and start seeking God’s plan for my life. It might not be the most comfortable life, but I know it will be the most fulfilling life. Right now Paul and I are praying into our future and asking God where He wants us to step out in faith. Watch this space for more exciting adventures.

Love Katie x


Phew! It feels good to be back in the land of the living. By that I mean the last week or so has felt as though I am approaching death. Well perhaps that is an overstatement… P and I both caught some kind of illness, sickness, virus, flu, whatever you want to call it. I think it has been years since we were both that unwell. Of course since we were both unwell it felt as though we just hobbled along each day, both of us managing to do what we could. Today is the first day that I have managed to get dressed in over a week! Although I got the migraine far more badly than P did, he seems to not be able to bounce back at all. He is exhausted all of the time, and I feel completely useless, unable to take the burden of duties like cooking from him. As he isn’t particularly unwell he feels like he must continue working on his essays and going to work. He is such a trooper. I am so lucky that I married a man who will never give up.

Silver Valentine heart

I think the silver heart matches
my pink pjs perfectly

Valentine’s Day

With me barely able to lift my head off the pillow and unable to stand the stand the sound of speaking, and P sleeping most of the day, our first Valentine’s day as a married couple was not exactly how we had imagined. The most romantic that things got was when P passed me a tissue. We did exchange gifts though. We had decided to have an ethical Valentines so our gifts had to have some kind of ethical edge, for example the gift would be fair trade or would be handmade. I was given a beautiful silver heart necklace, which I absolutely adore. Once we are both up to scratch we are hoping to have a belated V-day since it is one of my favourite holidays.

 

Shrove Tuesday & Lent

One of the highlights of last week though was Shrove Tuesday or Pancake day. For those of my readers who don’t know what this means, it is the day before Lent begins. Pancakes were originally made to use up all of the “luxuries” (butter, sugar, etc) one would have in the cupboard before the beginning Nutella crepes (2)of lent, where people restrain from such things until Easter. I won’t go into more detail here, I’m sure there are lots of places on the internet that can explain it better than I. Anyway, the lovely moment was that P made me Nutella crepes, one of my favourite things, in the shape of hearts. I didn’t even ask him, he just did it to cheer me. How sweet is that?

That brings me to Lent. This year I have decided to give up puddings for two reasons. Firstly, I think I often eat puddings, not because I’m hungry but because I just crave something sweet as a bad habit. I’d like to break the habit but since breaking a habit takes restraint, this will help me grow the discipline that Lent intends you to. Lastly, the time I would spend eating pudding can be spent praying, as I did when I fasted the internet recently.

Are you giving anything up for Lent?

 

Love Katie x


I can’t believe Christmas is over for another year, the time has just flown by. Of course my being very beforehand meant the whole affair sort of took me off guard. I did manage to enjoy the day though, and some time with my family. I didn’t get to spend time with the friends that I wanted to unfortunately, but you can’t have everything. I am now safely back in my little flat, with Paul and my kitten Didi. It has been so long that I haven’t even been able to write to you about the little edition to our household.

A photo I took of Didi for our Round Robin letter

A photo I took of Didi for our Round Robin letter

Didi came to me the Friday before my birthday, as a surprise. Paul got her from another family who were no longer able to have her so she was already 19 weeks old. She settled in quickly though, and seems attached to me and P. She follows us all over the house, and likes to be close to one of us all the time. Didi acts crazy (and I mean crazy) part of the time, racing and racing around the room, but she’ll also happily sit in bed with me for hours on end or snuggle up for nap time. The perfect temperament for us.

Didi is black with lots of white dots and strips on her belly. The best part of her fur though is that she has little white socks. So cute. She also likes posing for pictures, and responds to her name as dutifully as a dog. My mood has improved greatly since Didi came to live with us and I don’t feel as lonely anymore, that was exactly P’s plan of course.

The three of us are spending new year’s eve together tomorrow at home. I’m still feeling very fragile health wise, and a little knocked for six after Christmas so anything high energy was off the cards, I might not even stay up until midnight. I’m not a huge fan of new year’s eve, but it seems a bit sad to do nothing so we’re planning on getting some fruity treats, doing a puzzle and watching some films. The good thing about NYE is that you feel as though you have to re-assess your life and the last year. Instead of allowing myself to be depressed by all the things I haven’t been able to do because of my illness, I am going to list all the great and wonderful things that have happened this year and thank God for them.

How are you celebrating NYE?

Love Katie x


Driving home for the first time on my new scooter

So something very exciting happened this week…I got a mobility scooter! Last Sunday, on the way home from Church my wheelchair broke. Since we had the money to get a scooter, we took it as a hint to hurry up and spend it. We had been praying for the provision of a scooter, which God did provided (prayer works!) so why wait around? I took Monday off from university to go look for one.

As a side note-We found out from the internet that there are two mobility shops in Canton, which is on the other end of the city from us. We do have a spare wheelchair but the core piece which secures the chair is broken so it’s not very reliable and we were worried it might break if we tried to go so far in it. We contact two of our friends who had cars but they weren’t able to help us out so P and I put a request out on Facebook and Twitter, and I prayed once again. Within ten minutes, someone we know from school offered to help us out. I was completely taken aback because I barely know this person.  I was astonished that someone would go so far out of their way to help us out. This girl is so sweet and kind. After dropping us off, she offered to come back and pick us up if we needed it. Incredible. Not only did this girl help us out, but it also made P and I feel less alone, that when we ask for help, there are people who care.

Anyway, on with the story. When I was “driving” my new scooter home, I just couldn’t believe that I finally had one. For around three years, I have had to be dependent on someone else and now I have my independence back! It feels so incredible. My mind continually races with thoughts about all the things I can do again now.

It’s quite overwhelming, but in a good way. It’s up to me again now to decide when I need to rest and when I should go out. When I commit to do something, I am just committing myself, and not Paul as well, which is great for both of us.

One of the things we discussed in marriage prep lessons was having more individual lives again. We spend nearly all our time together, which we love, but we know it’s also very important for us to have separate lives. Particularly for Paul, he doesn’t spend much time doing something that doesn’t involve either caring for me or for someone else as part of his job, and I think it would be great for him if he started hanging out with guys on his own and did things just for his enjoyment.

Watch this space.

Love Katie x

Zoooooooooom!

p.s. Just in case you don’t follow me on Twitter and were wondering. Unfortunately I didn’t win the Cosmo Lifestyle Blog Award. Big thanks to all of those of you who voted for me and gave me support. I hope you’re not too disappointed in me.



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