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Tag Archives: M.E.

While I’ve been stuck in bed the past few months, I’ve spent a lot of time on the internet, reading blogs, watching YouTube and finding interesting people on Twitter. It’s struck me in the past week or so how many of the spoonies I “follow” online manage to achieve a lot, in spite of their illness. In some cases, they’ve used their illness to their advantage. As thoughts about this were swirling around my mind one night, I pondered how these women manage to do so much, when I seem to do so little. Was it because they weren’t as sick as me? Possibly, but that’s not the whole story. After much deliberation, I decided it was because they weren’t afraid to admit they had dreams and begin taking baby steps towards achieving them.

Failing yet again

When this academic year began, I had set my mind to focus on getting through my studies, it’s no surprise then that I fell into a depression when I got so sick again. Seeing weeks go by without my being able to study has been really difficult. I love learning, since I can remember, all I’ve wanted to do was go to university, and I love learning about politics. In a way, having tried so hard for so long to get through my degree only to keep “failing” at completing modules has just made me afraid to try anything else. I wouldn’t admit it out loud but my subconscious was saying, “why bother trying to do something you love? Your illness will only ruin it anyway.” I’ve been making plans but the majority of them have begun with the sentence, “when I’m well enough…”, which just isn’t happening.

Don’t misunderstand me, I haven’t given up on university, I will find a way to complete my degree, and I certainly haven’t given up the belief that I’ll get better, but I’m done waiting around for life to begin. That’s how Paul and I have felt, we’ve pushed ourselves to complete things, and life itself has been a real struggle for a long time, but when it comes to deepest desires, the things that mean the most to us, we’ve popped them on a shelf for “one day”. In a way, that’s allowing my illness to control us, the fear that we might only get one chance and that my illness will blow it for us, has prevented us from doing some things. There’s a certain amount of wisdom in that, but there’s been a lot of fear in that too.

Vintage pocket watch with open lid and chain on wooden surface

Making changes

This week we took the plunge and used some of our savings to book a holiday. The idea that we need to save for a rainy day has always been on our minds, and while that is generally a good principle to have, it’s made us afraid to spend any of our savings. Since we first became a couple and I got sick, we’ve been talking about going to Paris, and therefore, we’ve never wanted to spend our money on going anywhere else, because what if we can never save enough to go? Paris will still be there in future years when it is the right time for us to go, and I’m not going to believe that we’ll never get to go there if we go on holiday somewhere else. We know that we both need a holiday and we’d love to have a belated honeymoon. After all, lots of people generously gave us Euros at our wedding for that purpose. As we were chatting away about this, we both came to the realisation that although we’d love to go to a city and have an adventure, we’re both exhausted and what we really need is some time away somewhere hot, with a pool, and a beach. That’s what we did. We’ve booked a last minute holiday to Gran Canaria for a week. The fear that I felt when I clicked the little button to pay online was ridiculous, which made me all the more certain I was doing the right thing. It’s not like we’ve spent all of our savings on a crazy extravagant holiday that I obviously can’t manage. We booked something nice, albeit the cheapest place we could book, with disabled access. I don’t think I need to say any more to prove quite how unfounded my fears are.

Maspalomas, Gran Canaria

Having bitten the bullet on spending savings on a holiday, I’m determined to keep making progress on my dreams. I think putting all my eggs into the university basket was a mistake, and not one I’m going to repeat. What’s most important though is that I stop making my own contingency plans and start seeking God’s plan for my life. It might not be the most comfortable life, but I know it will be the most fulfilling life. Right now Paul and I are praying into our future and asking God where He wants us to step out in faith. Watch this space for more exciting adventures.

Love Katie x


This blog was written by Paul but dictated by Katie.  For the foreseeable future, because of Katie’s illness, this will be a common format here at Chronically Katie.

Firstly, let me apologise for the lack of content on here over the last few weeks. As I’m sure you’ve guessed, I’ve been very ill for some time now. The ‘brain fog’ which is associated with my illness has been worse than ever. It’s got so bad that I’m struggling to read, or even listen to audio books. These are the kinds of activities which is usually fill my life with when I’m stuck in bed 24/7. The most worrying development associated with this has been that I’m seriously struggling to hold conversations. It’s not because I can’t concentrate, it’s because I literally haven’t been able to understand what people are saying. When my husband speaks to me, it’s like he’s speaking another language.

As you can imagine, these recent developments have made it impossible for me to write my own blog posts. That’s why Paul is writing this one for me. I’m relaying to him everything I want said, so this is still me, but he’s helping by putting my mumblings into sentences.  This is going to be a common format for this blog over the next few weeks. I’ll let you know at the beginning of each post whether I’m writing it myself or whether Paul is acting as my scribe.

 

Chronically Katie YouTube channel

I’m not going to to let my illness beat me. I’m especially not content to let my illness stop me from doing what I enjoy. To get around this new wave of ‘brain fog’, I’m going to be making more videos on my YouTube channel. I’m really looking forward to exploring this alternative media format. I’ve already got a few videos on my channel. Please don’t forget to check them out and let me know your thoughts on them. I’m very new to vlogging, so it would be great to get some constructive feedback.

At the moment, I’m working a lot on creative outlets so be sure to subscribe so you don’t miss anything.

 

Giveaway coming soon!

Another exciting development here at Chronically Katie is that soon I will be announcing a competition giveaway. I will be revealing the prize in a later post, but what I can tell you is that it will be well worth your attention. The deal will be that only my subscribers can enter. Make sure you do subscribe to the blog now so that you don’t miss out later. You can subscribe by entering your email address into the sidebar tool. If you’re not sure whether you’re already a subscriber- do you get an email each time I post a new article? If not, then you’re not currently a subscriber.

Keep your eyes out, over the next few weeks, for more details regarding the giveaway.

As ever, thanks for reading, watching, and/or subscribing.

Love Katie x

P.s. Are you on Tumblr or Instagram? I post there regularly throughout the day, follow me by clicking the links below.

Instagram

A quick message from Paul: Knowing how much Katie loves to get mail, many of you have been asking for Katie’s address so that you can send her stuff. We haven’t been able to establish a P.O. Box yet, so we can’t publish her address online, but you can email Katie at chronickatieblog@gmail.com to request her home address. Getting mail from her readers always gives Katie a massive boost, so I can’t encourage you enough to get in touch.


Our dates aren't always exciting & adventurous but what matters is that we spend quality time together.

Our dates aren’t always exciting & adventurous but what matters is that we spend quality time together.

So today is Friday which in the Davies household means date day! Every week Paul and I set aside at least one hour to do something fun together. We don’t have to spend the whole day together, but since it also our day of rest we can’t do *anything* work related. That’s not really relevant at the moment because we’re both to sick to do any university work anyway. Knowing that this is the one day we don’t have to feel guilty about not working though is a big bonus, it’s really brought back that Friday feeling we used to feel as a kids.

Today I woke up feeling awful, and I mean really awful. My arms were aching a lot and I felt completely exhausted. This isn’t really different from how I’ve been feeling for the last fortnight or so, but it just felt a bit worse this morning. As usual, I have no idea why since all I have done for the last week is rest. Anyway, my health having dictated that going out was off the cards, Paul and I agreed to revert to our secondary plan, a mug decorating date in our lounge. The plan is to get all of our duvets and pillows and make a big comfy fort to get me out of bed and then use Sharpies to decorate a mug to give to each other.

Date 1 (66)

Even though this is a slouchy, not much effort, low energy kind of date purposefully, I still want to make an effort to look nice, in the same way I would have when Paul and I first started dating. Up until recently, I would have known that doing my hair and make up was off the cards and so would have just moped about my appearance. Now, however, I have begun to develop a low energy and pain make up routine that I can do even when I have bad days like this. Since writing out the routine and taking photos would not only take a long time but a large amount of energy I’m going to make a YouTube video instead. It will be uploaded to my YouTube channel soon so make sure you check back there, or even better subscribe so you definitely won’t miss it (never miss an opportunity for a plug.

I don’t think this video is only relevant to sick people though, I don’t see why a normal, healthy person can’t check out this video and use the routine when they’ve only got 10 minutes until they need to leave for work and they look a mess. Or, for someone, I’m especially thinking of young girls, who don’t need to wear much make up.

The whole routine only takes about 5 minutes but I’ve been doing a step, resting for a while, doing another step, etc, so that by the time it’s date time I’m not exhausted. What would you know I even managed to write this blog post. I wonder if it’s something they put in bronzer…

Love Katie x

If there’s anything you’d particularly like to see either here on my blog or over at my YouTube channel, then pop a comment below. I’ve already had some great suggestions but I’m always open to new ideas. Remember, it doesn’t have to be beauty related!

I’m still working on the new layout, but I’m getting there, don’t you think?

 


I had a couple of “good” days last week so I took the opportunity to escape the confines of my bedroom and head to the shops with my little sisters, mother-in-law, and Paul (who hates shopping). It felt great to get out, especially as I managed to bag myself some beauty bargains. I have been wanting to do more beauty posts and videos both on here and over at my You Tube channel.

Beauty is more than skin deep

Since I’ve been really unwell, beauty for me has become something that has not only made me feel more beaut-iful (check the pun), but also allowed me to have a better relationship with my body. I know that sounds a little bit like the painkillers have really started to turn my brain to mush but allow me to explain. When you’re in a lot of pain and you constantly feel exhausted you begin to see your body as a prison, I know I’m not the only sick person who feels this way, but I’ve found that when I started experimenting with make up, bath bombs, lotions, etc, I began to feel happier in my skin again. The feminist side of me screams, ‘but isn’t that just the media telling you need to look a certain way?’ No, it’s different, a subtle difference I’ll admit, but there is a difference. Beauty products and routines allow me to feel human by making the most of my  body. I know that it’s not make up or body butter that makes me beautiful, but my skin does feel smooth and soft after my skin care routine. Very often, I’m in too much pain and too exhausted to do any kind of beauty routine and I’d choose being able to leave the house or spend time with people over doing my make up any day of the week, but when I can, I’ve come to love spending time looking after my body. Not to mention the fact that my body needs a lot more care than the average twenty-something year old because of my illness.

 

A new creation is born

These are thoughts that have been whirling around in my brain for sometime now but it’s only in the last couple of weeks that they’ve developed into something more. While I’ve been stuck in bed I’ve been watching a lot of make up tutorials, and beauty product reviews/hauls on You Tube, and finding new beauty blogs to read. It wasn’t long before it became glaringly obvious to me that there was a big gap amongst the huge wealth of material out there. I couldn’t find anything devoted to making sick people feel beautiful, and more importantly, I couldn’t find anything for someone with limited energy and high pain levels. With this revelation was birthed a new feature – Chronically Beautiful. I’m going to fill the gap so that anyone in a similar situation to me can have access to tutorials and reviews to fit their needs. I have loads of ideas but to give you a sneak peek, you can expect to see a big MUA make up review video soon, and posts like 5 minute make up routine, and daily skin care routine coming soon.

For now, I leave you with my first ever haul video:


 

As I’m new to this stuff, I really value feedback, so please leave any thoughts you have in the comments box below or on my You Tube channel.

Love Katie x

P.s. If you are or know of any beauty companies who would be interested in sponsoring this new venture then please contact me at the usual email address (chronicallykatieblog@gmail.com).

FASHION is a whole other ball game, but one that I intend to play so check back here soon. Don’t miss any updates by subscribing by e-mail in the box to the right of this post and to my You Tube channel.


Still smiling with a takeaway Costa & cuddles with Didi

“You’d be forgiven for thinking that I’d abandoned this blog, but you wouldn’t be right, very far from the truth in fact. Although I have been working a lot on Chronically Katie in my mind, very little of it has appeared on your monitor because I’ve been too unwell. For the last two months I have suffered from one illness after another, aside from my usual chronic illness of course.”

Unfortunately this is as much as Katie has been able to write over the last few weeks. As she says above, Katie has been extremely ill for the best part of two months now. There’s been a real battle going on behind the scenes here at Chronically Katie. She’s winning the fight, but as with any war, victory is hard fought and there are have been many injuries along the way.

Katie has asked me to step in and catch you up on what’s been going on. Quite a few technical changes are taking place at the moment. I’ve been working on moving the site to a self hosted platform and there are going to be changes in blog layout and design. This is all very exciting, however, it’s taking it’s time because I have no experience in all this. I’m teaching myself what to do as I do it. We’re asking that you bare with us while these renovations are taking place.

On a positive note, Katie is hoping to do a video blog sometime soon, so keep an eye out for that. To make sure that you don’t miss anything, you can subscribe to Katie’s You Tube channel.

My final update is that if you wish to send Katie anything in the mail, you can request her address by emailing chronicallykatieblog@gmail.com. You can send products for her to review, or something little to make her feel better when she’s so sick. She’s spending most days in bed so I know she’d love to hear from her readers. Feel free to send her anything from a postcard to a little gift. She loves receiving mail so it’s sure to bring a smile to her face.

Thanks for your patience,

Paul (Katie’s husband)

 


Oh boy do I have a lot to tell you! I have quite a few blog posts stored up in the tattered notebook in my mind which I hope I can transfer onto screen in the coming week. This post, however, as the name suggests, will focus on an extraordinary experience I had this week.

This week I went back to lectures after the long exam period (there’s another there). As I’ve mentioned countless times before on here, I love studying. I am not like other students who hate going to lectures, I excitedly try ad soak up everything my lecturer has to say. Yes, I am a geek.

I had to spend all Sunday and most of Saturday in bed so I thought my body would be eager to get up and about by Monday morning. No deal. I woke up Monday morning feeling awful. Paul helped me struggle through breakfast and getting dressed, feeding me my favourite cereal and coffee. He is amazing, what a hero.  when he could see that it was becoming more and more evident that I was not going to be able to drive my mobility scooter to university (bare in mind we live less than 4 minutes away , I’ve timed it), he did what we should have done in the first place – prayed. this brought a smile to my face. I know that I have a God who always has my best interests at heart. I find it incredible that I could trust my Heavenly Father completely and yet forget to put my day in his hands.

Anyway back to the story. Paul placed his hands on me and prayed that I would not only manage to get to my lecture but also that I would be able to concentrate on what the lecturer was saying. Just over an hour later he picked me up from my first lecture of the day. I had a giant smile on my face.

“It was so good, I loved it. I felt fine and could take it all in. I think I took really good notes too” I told P, a bit too loudly.

I went to two lectures yesterday, one today and I managed 40 minutes of work this morning too. This is incredible. The cynics among you might think that I am just experiencing a placebo effect or something. I am not saying I am completely healed, I still need my painkillers, and I needed a nap yesterday too, but I cannot think of another word to describe what is happening other then ‘miracle’. I have not even been able to mange 10 minutes of concentration for over a month, I’ve tried so many times and now all of a sudden I can attend lectures and read journal articles. Amazing.

I don’t know whether this is a beginning of a complete healing or whether this partial healing will only last a set amount of time. I know that  I have a God who I am trust and if I put my life in his hands will use all the pain, exhaustion, frustration and tear for something great.

I decided to share this experience on here to bring you hope. I know many of my readers are sick themselves or maybe you’re in another type of situation that you need breakthrough in. I know this post might make you uncomfortable, there’s a lot of pain and emotion associated with healing. I know because I’ve been and am still going through it myself. The disappointment of not being healed can make you want to give up. It seems to take up too much energy to keep trusting and hoping. If we stop believing though, we give in, our sickness wins.

Bible says we are more than conquerors. If you put your trust in God, He might not take your life where you want it to go or might not intervene in the way you want Him to but you can be certain that His plan is the best plan. That’s why, even though I want to be well and healthy, I know that I am in the right place, I have complete faith in him.

If this answer to Paul’s prayer has taught me anything its that I need to pray every morning and put my day in his hands.

Love Katie x


Milgi collage 2

Last night I got to leave my bedroom to see an actual person. Okay I live with my husband and it hadn’t been that long since I left the house, but somehow not seeing my friends for weeks made me feel like I’d been in hibernation. Last night P and I  went to one of our favourite cafe/restaurant/bars, a place name Milgi and my tummy is still full. I am yet to find a single person who has been to Milgi and not loved it. The place is a treasure trove of art, creativity, and interior design genius. I always forget quite how much I love the place, and how happy being there makes me. I was annoyed with myself for forgetting to take my digital camera. I wish I could have taken some photos of my favourite parts of the place. Instead I was stuck with my phone camera, and since I am still using my iPhone 3GS I don’t have a flash. Oh well guess it means I’ll have to go back soon, eh?

Aside from the pretty interior and lovely atmosphere, Milgi has some of the best food I have ever tasted. The restaurant is completely vegetarian, something P and I would have turned our noses up a couple of years ago. I wouldn’t have imagined P loving bean burgers when we first met. The place has changed the way we look at vegetarian meals though. Last night I tucked into one of their legendary nut roasts, and for pudding cinnamon doughnuts with chocolate dipping sauce and cream. All made on the premises.

Enough about my love of food though and more about the person we had dinner with. I’ve mentioned M a couple of times on here, but probably not enough considering she is one of our best friends. She’s the sort of person who you always makes you laugh until your sides hurt. The night as a whole then was definitely worth braving the snow for (which Edith, my mobility scooter, handled wonderfully by the way) and the whole day it has taken me to recover. The night refreshed me a little so I feel a bit more motivated to get on with some university work, that’s a story for another post.

Love Katie x

 

Mobility Waterproof Scooter Storage Cover


Yesterday was an exhausting but wonderful day. I’ve said (or written) before on here that sometimes I do things that are far beyond what I know my body can manage, but I do them because it’s worth the pain and exhaustion during and after the event. Yesterday afternoon is a prime example. Back in the summer I purchased a voucher from Living Social for me and my best friend, R (remember her from this post?), to have a makeover and photo shoot at a studio in Cardiff.

R lives all the way in Kent so even though her birthday is in November, yesterday was the first opportunity we had to go to the studio. There was a point back in November when I thought I’d ballsed it up and that we wouldn’t be able to go at all. It was mid-Nanowrimo and I was feeling really sick, and basically I forgot to book before my voucher ran out. Thankfully, when Paul rang, the lady at Revolve was really understanding and let us book anyway. Phew.

Source: Google images

Source: Google images

As usual on an important day, my body decided to have a bad day so things didn’t go to plan yesterday. Despite resting the day before and going to bed at a reasonable time, I woke up yesterday morning feeling like I’d run three marathons the day before. I was utterly exhausted. We needed to be at the studio by 1pm and I wasn’t able to get out of bed until 12pm. Not a great start, but thanks to a higher than usual dose of painkillers and a cup of coffee that closely resembled oil, I was at least able to move quite quickly when I did get out of bed. Unfortunately, as I was on a huge high, I couldn’t think straight so I was still darting around the house like a mad thing when R arrived.

I’ve realised lately how important it is for me to eat regularly. I probably should have reached this conclusion much sooner, but it’s become apparent just how much worse I feel when I am late eating any of my three meals or skip one. I lose my appetite quite easily when I feel sick (hard to believe when you see the size of me I know) but now I make sure I eat at least a little something wholesome for breakfast and lunch each day. It wasn’t a good plan then for me to skip lunch yesterday because I didn’t have time to eat. It also meant that when we arrived home later after the photo shoot that I pigged out on high sugar and fat snacks like biscuits. Naughty naughty. This is a bad idea for anyone, but when your body puts on a stone at the sight of ice cream, it’s a really bad idea. I can add yesterday to the long list of examples which have taught me to plan ahead better so that even if I can’t think laterally Paul knows what I need and when.

Despite all of the things that went wrong, R and I arrived at the studio and, as it always does, everything worked out fine. Better than fine actually, a brilliant afternoon was had by all. I love make up but I don’t often have the energy to spend time doing it, so I love it when someone else is doing it for me. A professional make up artist choosing from their array of expensive make up is a great treat for me. Of course I love having my hair done too. I can’t lift my arms without being in a lot of pain so even if I knew how to style a beehive, I wouldn’t be able to, so any opportunity I get for someone to style my hair like that, I jump at the chance. The three times I’ve had a hairdresser style my hair into a beehive, whenever I’ve been asked how high to take it, without a second thought I answer, “as high as you can.”

Not only were all of the staff lovely and paid us compliments (never a bad thing, flattery goes a long way), the studio were really good at helping me manage my disability. Paul had told them beforehand I was disabled, but hadn’t gone into any details. The photographer picked up on what I could and couldn’t manage though by how easily I walked (using my stick and R’s arm) and made sure all the photos that included me didn’t contain any difficult poses. This was a huge improvement since the last time I was at the studio. When I went to the same studio with my sister two years before, the photographer had me sitting on the floor, doing poses that required balance, etc, even though I’d explained to her my illness. At the time I went along with it because I never want to say, “no that hurts too much.” This time, however, the only time I was standing in a photo was when I was leaning against a wall. The rest of the time I was sitting on some kind of prop or chair, but R had photos lying on the floor, and other types of poses I would have struggled with. The fact that I didn’t need to mention my illness the whole afternoon made the time so much more enjoyable. I’d never expect someone to be that aware of what I can and can’t manage, but it certainly is nice when it does happen.

Source: Google images

Source: Google images

The best bit of the afternoon though was seeing how gorgeous R looked. She is having a difficult time at the moment and definitely deserves some pampering. She is one of, if not the, most beautiful women I know. When she was having her photos taken, she actually reminded me of a model or a film star.

The hardest part was when it came to choosing our shots. R looked so wonderful in all of hers that I wanted to buy them all for her, of course monetarily, that would have meant not paying rent. I have to admit, I didn’t feel great about myself looking at the photos of me, but I wasn’t too upset since the afternoon was about giving R a great birthday treat and not about boosting my self esteem. In the end, we were able to come away with four lovely shots though, which we were both happy with. I can’t wait to put copies of the photos into frames so that I can re-live the memory of that afternoon many times over.

So, what do you think of the photos?

Small image

Small image 3

Author image

Small image 2

Love Katie x


Source: Google images

Source: Google images

Happy new year from the Davieses!

Blwyddyn Newydd Dda wrth yr Davieses!

(Paul, Didi & me) 

I would have loved to spend NYE with family, but for several reasons we couldn’t. Instead we enjoyed a quiet night just the three of us. Should I be counting my kitten? The day before, after a bit of internet searching I had found a couple of ideas to make our night fun, but low in energy expenditure. I saw a great idea on one forum, to eat healthy snacks instead of junk food, on the basis that you would wake up on 1st January feeling like you had already gotten back on track with a balanced diet after Christmas. I took this idea and ran with it. We had a yummy fruit platter, started a puzzle, played one of our new games (great Christmas present) and watched a film on iplayer. We spent the night doing things we enjoyed, without compromising my health. This meant that I woke up today, able to start 2013 the way I want it to continue, able to utilise my energy to work on my degree.

I was saddened to see many people on Facebook and Twitter writing negative messages about 2012. I know that for many people, there are a lot of bad memories associated with the last year, but I also know that most of these people had so many things to celebrate and be thankful for too. For P and I, the last year hasn’t always been easy, my health especially has deteriorated, which is both frustrating and de-moralising, but we would rather focus on all the fantastic things that happened over the last year, from the little things like the time we managed to go to the park, to the huge things, we got married. Of course, we have more to celebrate than a lot of people because we got married, one of the best things to happen to anyone.

Nothing like a night in with these two crazy cats

Nothing like a night in with these two crazy cats

I do believe the best is yet to come though, I don’t say that just because we’re young and I think I’ll get better, but because I know that God never provides a dull life. I can’t think of a single person I know who has a close relationship with God and a boring life. A life of adventure awaits all of us. Sometimes that adventure takes us through valleys, but even those awful times can have purpose when put into the hands of our Creator. Just writing these things makes me so excited for what lies ahead for me and Paul this year. Part of me is terrified, P is due to complete his degree this year, which throws up so many questions about how we will manage my health and stay financially afloat, but when I look in the Bible, I see that I have nothing to fear as long as I have God with me.

Many of people would have hated to spend NYE the way I did, but I felt perfectly contented. It’s easy to become disheartened because of all of things we don’t have,  but it’s difficult not to feel blessed when you count all of the things you do have. We should never take the basics like a roof over our head and food on the table for granted. The headlines of increasing unemployment and homelessness should teach us that.

At midnight, we tuned into BBC1 because I love fireworks. I might not be able to attend the Calennig celebrations in Cardiff, but I can see the wonderful firework display in London on my laptop. My favourites are the ones which follow the London Eye around in a circle. One year they used the Eye as a countdown clock for the last 60 seconds of the year. Amazing. With a big grin on my face, I kissed my husband at midnight, and thanked God for blessing me with such a wonderful partner for life.

Source: Google images

Source: Google images

Thank you so much for reading my blog in 2012, I hope you will continue to do so this year. I want to take Chronically Katie further this year, to raise even more awareness about invisible illnesses. This cause is more important than ever before, as the pages of the newspaper fill with articles persecuting patients and my inbox fills with desperate stories of those who are refused benefits and care. Please help me to help disspell the myths and misunderstandings so that fighters of invisible illnesses can get the care and support they both need and deserve.

Love Katie x


Day one in the Davies (or should that be NaNoWriMo) household, Katie is writing… That was supposed to be said in the Big Brother voice, or at least that’s how it sounded in my head.

My novel has got off to a good start so far. I have managed to bang out 3809 words today and it’s only 7:50pm. This is due largely to the fact that my health is very, very bad today. I know that sounds like an oxymoron, all shall be revealed.

Today is one of those days where I feel like I have lived a week in twelve hours. My health has been up and down all days, some of the time, like now, I feel ok, my legs are aching so I’m stuck in bed, but I am able to write, even though I cannot concentrate on reading or studying. At some points of the day however, I have been desperate to fall asleep because I just felt so sick. I don’t really know how to explain the extreme exhaustion, pain and sickness, except to say that if my mum were near, I would cry like a baby for her to come cuddle me when I feel like that.

I have been alone almost completely all day so to ward off any depression and negative thought cycles, I have just kept my novel on my mind. I haven’t been well enough to write all of the time, but I have been thinking of Ally all day long, meaning that when I can write, I have so much in my mind my fingers can’t type fast enough.

When I woke up this morning, I felt so far away from being able to focus on anything, let alone begin a novel, but I had prepared for this with two age-old writer’s tools:

Morning pages

I have heard many names for this, but essentially I just wrote about something other than what I was working on. Some writers, as I did, write journals to wake up their creative mind. It’s like sport, you can try just running, but you’re more likely to do a lot better if you stretch your muscles and focus your mind on the task ahead.The first thing you write at the beginning of the day is likely to be the worst thing you write that day so it’s a good idea to not put that in your novel.

Music

Background noise, providing it is not too loud can help a writer get into the scene or into their character’s head. I am writing about an angry, hurt, and rejected woman so I flicked through my iPod to find all the music I used to listen to as a teenager when I was feeling that way. This immediately puts me in the right place to think and feel the way Ally does. Certain songs remind us of certain feelings, it’s a good idea to harness this for my writing. On the other hand, if I listen to Ben Howard, I am going to feel calm and happy. I haven’t used it yet, but I also downloaded an the Ambiance app, which has a huge library of different sounds. I am planning to use these for certain scenes. So for example, if my character is taking a country walk, I can create a playlist of various wildlife sounds to help my mind picture what is happening.

 

One of the things I want to do this month is to use my intense novel writing to try out different writing techniques. Today I used journaling to warm up, perhaps I’ll stick with that for about a week before moving on to something different. I am doing the same with where I write. I was able to get out of the house to go to the library to write for an hour today, which was great because I have never tried writing there before. It went well, I was free from distractions and comfy on the new sofas. I’m not sure I’ll be able to get to the library every day for a week but I’ll try going there to write a few times, before moving on to a new venue. Obviously I tried writing in my bed too, but that doesn’t count as an experiment since I always write here (yup I’m there right now). By the end of this month I should have a good idea about my writing habits- where and how I work best.

Have you got any writing techniques or venues you use or have heard of that I could try out?

Love Katie x

P.s. My new blogging buddy Amelia is NaNoWriMo rebel because she is using this month to continue with her memoir about life with cerebral palsy.She is posting the whole thing on her blog day-by-day. I read the first installment today and felt positive I had to share it with you, it is a fantastic first draft. Check it out here.

You can find out more about my novel  and keep up to date with my progress on my NaNoWriMo page.



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