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Our dates aren't always exciting & adventurous but what matters is that we spend quality time together.

Our dates aren’t always exciting & adventurous but what matters is that we spend quality time together.

So today is Friday which in the Davies household means date day! Every week Paul and I set aside at least one hour to do something fun together. We don’t have to spend the whole day together, but since it also our day of rest we can’t do *anything* work related. That’s not really relevant at the moment because we’re both to sick to do any university work anyway. Knowing that this is the one day we don’t have to feel guilty about not working though is a big bonus, it’s really brought back that Friday feeling we used to feel as a kids.

Today I woke up feeling awful, and I mean really awful. My arms were aching a lot and I felt completely exhausted. This isn’t really different from how I’ve been feeling for the last fortnight or so, but it just felt a bit worse this morning. As usual, I have no idea why since all I have done for the last week is rest. Anyway, my health having dictated that going out was off the cards, Paul and I agreed to revert to our secondary plan, a mug decorating date in our lounge. The plan is to get all of our duvets and pillows and make a big comfy fort to get me out of bed and then use Sharpies to decorate a mug to give to each other.

Date 1 (66)

Even though this is a slouchy, not much effort, low energy kind of date purposefully, I still want to make an effort to look nice, in the same way I would have when Paul and I first started dating. Up until recently, I would have known that doing my hair and make up was off the cards and so would have just moped about my appearance. Now, however, I have begun to develop a low energy and pain make up routine that I can do even when I have bad days like this. Since writing out the routine and taking photos would not only take a long time but a large amount of energy I’m going to make a YouTube video instead. It will be uploaded to my YouTube channel soon so make sure you check back there, or even better subscribe so you definitely won’t miss it (never miss an opportunity for a plug.

I don’t think this video is only relevant to sick people though, I don’t see why a normal, healthy person can’t check out this video and use the routine when they’ve only got 10 minutes until they need to leave for work and they look a mess. Or, for someone, I’m especially thinking of young girls, who don’t need to wear much make up.

The whole routine only takes about 5 minutes but I’ve been doing a step, resting for a while, doing another step, etc, so that by the time it’s date time I’m not exhausted. What would you know I even managed to write this blog post. I wonder if it’s something they put in bronzer…

Love Katie x

If there’s anything you’d particularly like to see either here on my blog or over at my YouTube channel, then pop a comment below. I’ve already had some great suggestions but I’m always open to new ideas. Remember, it doesn’t have to be beauty related!

I’m still working on the new layout, but I’m getting there, don’t you think?

 


I had a couple of “good” days last week so I took the opportunity to escape the confines of my bedroom and head to the shops with my little sisters, mother-in-law, and Paul (who hates shopping). It felt great to get out, especially as I managed to bag myself some beauty bargains. I have been wanting to do more beauty posts and videos both on here and over at my You Tube channel.

Beauty is more than skin deep

Since I’ve been really unwell, beauty for me has become something that has not only made me feel more beaut-iful (check the pun), but also allowed me to have a better relationship with my body. I know that sounds a little bit like the painkillers have really started to turn my brain to mush but allow me to explain. When you’re in a lot of pain and you constantly feel exhausted you begin to see your body as a prison, I know I’m not the only sick person who feels this way, but I’ve found that when I started experimenting with make up, bath bombs, lotions, etc, I began to feel happier in my skin again. The feminist side of me screams, ‘but isn’t that just the media telling you need to look a certain way?’ No, it’s different, a subtle difference I’ll admit, but there is a difference. Beauty products and routines allow me to feel human by making the most of my  body. I know that it’s not make up or body butter that makes me beautiful, but my skin does feel smooth and soft after my skin care routine. Very often, I’m in too much pain and too exhausted to do any kind of beauty routine and I’d choose being able to leave the house or spend time with people over doing my make up any day of the week, but when I can, I’ve come to love spending time looking after my body. Not to mention the fact that my body needs a lot more care than the average twenty-something year old because of my illness.

 

A new creation is born

These are thoughts that have been whirling around in my brain for sometime now but it’s only in the last couple of weeks that they’ve developed into something more. While I’ve been stuck in bed I’ve been watching a lot of make up tutorials, and beauty product reviews/hauls on You Tube, and finding new beauty blogs to read. It wasn’t long before it became glaringly obvious to me that there was a big gap amongst the huge wealth of material out there. I couldn’t find anything devoted to making sick people feel beautiful, and more importantly, I couldn’t find anything for someone with limited energy and high pain levels. With this revelation was birthed a new feature – Chronically Beautiful. I’m going to fill the gap so that anyone in a similar situation to me can have access to tutorials and reviews to fit their needs. I have loads of ideas but to give you a sneak peek, you can expect to see a big MUA make up review video soon, and posts like 5 minute make up routine, and daily skin care routine coming soon.

For now, I leave you with my first ever haul video:


 

As I’m new to this stuff, I really value feedback, so please leave any thoughts you have in the comments box below or on my You Tube channel.

Love Katie x

P.s. If you are or know of any beauty companies who would be interested in sponsoring this new venture then please contact me at the usual email address (chronicallykatieblog@gmail.com).

FASHION is a whole other ball game, but one that I intend to play so check back here soon. Don’t miss any updates by subscribing by e-mail in the box to the right of this post and to my You Tube channel.


Yesterday was an exhausting but wonderful day. I’ve said (or written) before on here that sometimes I do things that are far beyond what I know my body can manage, but I do them because it’s worth the pain and exhaustion during and after the event. Yesterday afternoon is a prime example. Back in the summer I purchased a voucher from Living Social for me and my best friend, R (remember her from this post?), to have a makeover and photo shoot at a studio in Cardiff.

R lives all the way in Kent so even though her birthday is in November, yesterday was the first opportunity we had to go to the studio. There was a point back in November when I thought I’d ballsed it up and that we wouldn’t be able to go at all. It was mid-Nanowrimo and I was feeling really sick, and basically I forgot to book before my voucher ran out. Thankfully, when Paul rang, the lady at Revolve was really understanding and let us book anyway. Phew.

Source: Google images

Source: Google images

As usual on an important day, my body decided to have a bad day so things didn’t go to plan yesterday. Despite resting the day before and going to bed at a reasonable time, I woke up yesterday morning feeling like I’d run three marathons the day before. I was utterly exhausted. We needed to be at the studio by 1pm and I wasn’t able to get out of bed until 12pm. Not a great start, but thanks to a higher than usual dose of painkillers and a cup of coffee that closely resembled oil, I was at least able to move quite quickly when I did get out of bed. Unfortunately, as I was on a huge high, I couldn’t think straight so I was still darting around the house like a mad thing when R arrived.

I’ve realised lately how important it is for me to eat regularly. I probably should have reached this conclusion much sooner, but it’s become apparent just how much worse I feel when I am late eating any of my three meals or skip one. I lose my appetite quite easily when I feel sick (hard to believe when you see the size of me I know) but now I make sure I eat at least a little something wholesome for breakfast and lunch each day. It wasn’t a good plan then for me to skip lunch yesterday because I didn’t have time to eat. It also meant that when we arrived home later after the photo shoot that I pigged out on high sugar and fat snacks like biscuits. Naughty naughty. This is a bad idea for anyone, but when your body puts on a stone at the sight of ice cream, it’s a really bad idea. I can add yesterday to the long list of examples which have taught me to plan ahead better so that even if I can’t think laterally Paul knows what I need and when.

Despite all of the things that went wrong, R and I arrived at the studio and, as it always does, everything worked out fine. Better than fine actually, a brilliant afternoon was had by all. I love make up but I don’t often have the energy to spend time doing it, so I love it when someone else is doing it for me. A professional make up artist choosing from their array of expensive make up is a great treat for me. Of course I love having my hair done too. I can’t lift my arms without being in a lot of pain so even if I knew how to style a beehive, I wouldn’t be able to, so any opportunity I get for someone to style my hair like that, I jump at the chance. The three times I’ve had a hairdresser style my hair into a beehive, whenever I’ve been asked how high to take it, without a second thought I answer, “as high as you can.”

Not only were all of the staff lovely and paid us compliments (never a bad thing, flattery goes a long way), the studio were really good at helping me manage my disability. Paul had told them beforehand I was disabled, but hadn’t gone into any details. The photographer picked up on what I could and couldn’t manage though by how easily I walked (using my stick and R’s arm) and made sure all the photos that included me didn’t contain any difficult poses. This was a huge improvement since the last time I was at the studio. When I went to the same studio with my sister two years before, the photographer had me sitting on the floor, doing poses that required balance, etc, even though I’d explained to her my illness. At the time I went along with it because I never want to say, “no that hurts too much.” This time, however, the only time I was standing in a photo was when I was leaning against a wall. The rest of the time I was sitting on some kind of prop or chair, but R had photos lying on the floor, and other types of poses I would have struggled with. The fact that I didn’t need to mention my illness the whole afternoon made the time so much more enjoyable. I’d never expect someone to be that aware of what I can and can’t manage, but it certainly is nice when it does happen.

Source: Google images

Source: Google images

The best bit of the afternoon though was seeing how gorgeous R looked. She is having a difficult time at the moment and definitely deserves some pampering. She is one of, if not the, most beautiful women I know. When she was having her photos taken, she actually reminded me of a model or a film star.

The hardest part was when it came to choosing our shots. R looked so wonderful in all of hers that I wanted to buy them all for her, of course monetarily, that would have meant not paying rent. I have to admit, I didn’t feel great about myself looking at the photos of me, but I wasn’t too upset since the afternoon was about giving R a great birthday treat and not about boosting my self esteem. In the end, we were able to come away with four lovely shots though, which we were both happy with. I can’t wait to put copies of the photos into frames so that I can re-live the memory of that afternoon many times over.

So, what do you think of the photos?

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Love Katie x


Day one in the Davies (or should that be NaNoWriMo) household, Katie is writing… That was supposed to be said in the Big Brother voice, or at least that’s how it sounded in my head.

My novel has got off to a good start so far. I have managed to bang out 3809 words today and it’s only 7:50pm. This is due largely to the fact that my health is very, very bad today. I know that sounds like an oxymoron, all shall be revealed.

Today is one of those days where I feel like I have lived a week in twelve hours. My health has been up and down all days, some of the time, like now, I feel ok, my legs are aching so I’m stuck in bed, but I am able to write, even though I cannot concentrate on reading or studying. At some points of the day however, I have been desperate to fall asleep because I just felt so sick. I don’t really know how to explain the extreme exhaustion, pain and sickness, except to say that if my mum were near, I would cry like a baby for her to come cuddle me when I feel like that.

I have been alone almost completely all day so to ward off any depression and negative thought cycles, I have just kept my novel on my mind. I haven’t been well enough to write all of the time, but I have been thinking of Ally all day long, meaning that when I can write, I have so much in my mind my fingers can’t type fast enough.

When I woke up this morning, I felt so far away from being able to focus on anything, let alone begin a novel, but I had prepared for this with two age-old writer’s tools:

Morning pages

I have heard many names for this, but essentially I just wrote about something other than what I was working on. Some writers, as I did, write journals to wake up their creative mind. It’s like sport, you can try just running, but you’re more likely to do a lot better if you stretch your muscles and focus your mind on the task ahead.The first thing you write at the beginning of the day is likely to be the worst thing you write that day so it’s a good idea to not put that in your novel.

Music

Background noise, providing it is not too loud can help a writer get into the scene or into their character’s head. I am writing about an angry, hurt, and rejected woman so I flicked through my iPod to find all the music I used to listen to as a teenager when I was feeling that way. This immediately puts me in the right place to think and feel the way Ally does. Certain songs remind us of certain feelings, it’s a good idea to harness this for my writing. On the other hand, if I listen to Ben Howard, I am going to feel calm and happy. I haven’t used it yet, but I also downloaded an the Ambiance app, which has a huge library of different sounds. I am planning to use these for certain scenes. So for example, if my character is taking a country walk, I can create a playlist of various wildlife sounds to help my mind picture what is happening.

 

One of the things I want to do this month is to use my intense novel writing to try out different writing techniques. Today I used journaling to warm up, perhaps I’ll stick with that for about a week before moving on to something different. I am doing the same with where I write. I was able to get out of the house to go to the library to write for an hour today, which was great because I have never tried writing there before. It went well, I was free from distractions and comfy on the new sofas. I’m not sure I’ll be able to get to the library every day for a week but I’ll try going there to write a few times, before moving on to a new venue. Obviously I tried writing in my bed too, but that doesn’t count as an experiment since I always write here (yup I’m there right now). By the end of this month I should have a good idea about my writing habits- where and how I work best.

Have you got any writing techniques or venues you use or have heard of that I could try out?

Love Katie x

P.s. My new blogging buddy Amelia is NaNoWriMo rebel because she is using this month to continue with her memoir about life with cerebral palsy.She is posting the whole thing on her blog day-by-day. I read the first installment today and felt positive I had to share it with you, it is a fantastic first draft. Check it out here.

You can find out more about my novel  and keep up to date with my progress on my NaNoWriMo page.


Image source: whatsfab.ca

Today has been a much better day. For one thing I’ve managed to not only get out of bed but also get dressed. P needed to go to the train station today so mum and I thought we’d use the opportunity of being in town to get some supplies for crafts which need to be done for the wedding, and also to get me a new outfit for my hen party.

 After much deliberation about whether precious saving funds should be used to buy a new dress, we (me and P) decided that since I would only get one hen party (despite what the statistics might say), that I should feel really special. And, as mum pointed out, it can be a hen party/honeymoon outfit so that made me feel like I was a little more justified in buying something. I didn’t go crazy though, mummy took me to the fashionable boutique of Tesco and I spent a whole £7 on a new dress. I did splash out on a new jacket too which boosted the total cost up to almost £30.

 Going shopping for my hen party/honeymoon outfit has made me even more excited about this weekend. I just hope that going out for a couple of hours today won’t result in being too tired to enjoy the weekend. No, you haven’t lost a couple of days, you are correct in thinking that I begin conserving energy for a big weekend three days before the event. I did so before the family wedding on the weekend too, and it still took me four days to recover.

 I really just felt so horrendous yesterday. The pain and exhaustion made me just want to sleep away the whole day. The problem was the pain was just strong enough (even with painkillers) to keep me from sleeping most of the time. I can’t articulate how much I don’t want to be that sick after my hen weekend. I feel terrible writing these things because I know there are so many spoonies out there who would love to be in my position. It sounds ungrateful to be saying these things, it’s hardly terrible that I’m going to Bath for Saturday/Sunday. Even more so, I know I am incredibly lucky to have a mum and sister who took the time to learn how to look after me so that I could go places without Paul, and even that I can get out of my house to go anywhere, let alone on a mini-holiday.

 I don’t count these blessings lightly, I am grateful for them. When I am confronted by the painful accusations and remarks of unbelievers and have days as bad as yesterday, I become even more acutely aware of just how much worse life could be. I think my mummy is so wonderful for patiently taking me shopping today. It’s no easy feat, it means giving me so much attention, and not much time to shop for yourself. I am so privileged.

 What are you thankful for today?

Love Katie x


I don’t know about you, but I always find it difficult to imagine what a person’s day actually includes. For a bit of a difference, I thought I’d do a visual post showing the sort of things I usually do in the morning. I hope my pictures and writing are clear enough, I’m not the best artist, and I don’t have a scanner at the moment. Let me know if there’s any problems and I’ll do my best to resolve them. I’d love to know whether you, my readers, would enjoy this sort of post occasionally. 

Love Katie x

 

 

Have you enjoyed reading this blog post? Please consider voting for ‘Chronic Katie’ in the Cosmo Lifestyle Blog Awards 2012. For more info click here.


I’ve been thinking about how great a day I’ve had at Oakwood in my long periods in bed. Yes, I’m paying for my weekend of fun now, and I had to take a much higher dose of painkillers than I’m supposed to, to be able to do it, but, some days are just worth it. Sometimes occasions are just worth all of the pain, in order to not miss out. P has been wanting to go to Oakwood for literally years, I wasn’t going to let this opportunity pass by.

 My ability to go to Oakwood and enjoy the day was made so much easier by the fact that Oakwood had already made provisions for disabled people, and not just those they have to by law. It was great that I had access to all the rides, although I felt guilty about skipping the queues. It’s frustrating enough that there are lots of places I can’t go because it isn’t possible to make them accessible, so I’m thankful that there are laws that require those places which could be accessible, to be so. I find it infuriating when I could easily have access to somewhere (for example a restaurant or a shop) if minor adjustments, such as a small ramp, were made, but I can’t because those provisions aren’t made.

It sometimes feels like everywhere I go there are problems. When I first had to start using a wheelchair I felt like such an inconvenience, living a normal day life was suddenly full of all these obstacles. All at once your eyes are opened to these problems all around you, these tiny little problems that all mount up. No drop curve, people won’t move for you to pass, a display stand in the aisle makes it impossible for you to pass, a step into a shop, the disabled access door is broken and hasn’t been fixed, the lift is full of people who don’t want to take the escalator located a few metres away. All of those things happen every time I go into the city centre. I realise that I am so lucky to have P there with me. It’d be impossible on my own. P and I have had to develop a lot of patience.

It was quite a treat then to have access to everywhere on day at Oakwood.

Love Katie x


I am feeling the happy kind of exhaustion as I write this, the kind of exhaustion which is a result of having had a great weekend. On Saturday night my best friend R had a garden party. P and I stayed with her and travelled to the coastal village of Broad Haven (one of my favourite places) the next day to stay with R’s nana. We had a nice roast dinner with her and were very close to the theme park, Oakwood, for our day trip on Monday. Busy, busy, busy, but I broke it up by rest breaks and naps.

Eating lunch at Oakwood

I really enjoyed the whole weekend, but there was one common theme which ran through the whole 3 days- no matter how much provision I put in place, my body has its own agenda, which everyone comes made subject to. On Saturday, I left the whole day to rest ready for the party in the evening. Admittedly, I woke up quite late, having had a rough night, but I thought I still had plenty of time to get everything done, which I needed to. I was very wrong. I worked so very slowly, each task taking much longer than necessary. This meant that we were over two hours late to the party, and arrived with me looking like death on wheels.

I won’t bore you with details of all of the delays caused by my body. The short version is that I struggled to sustain being chatty and energetic all weekend and fell asleep at every possible opportunity. Most 21-year olds aren’t used to having to take rest stops on a 45 minutes journey, but P and his friends had to.

Worst of all was my neediness this morning. Everything was going to plan for this weekend with regards to pacing myself, avoiding pelvic pain and muscle pain. I seemed to be dealing with the weekend away. If you sense there’s a ‘but’ coming then you’re not wrong. I woke up from a nap Sunday evening to find half of my face bright red, itchy and very hot. I tried all sorts of remedies, but when the infallible aloe vera didn’t work , I knew that wasn’t dealing with eczema or sunburn. The next morning, it had begun to spread a little so I rang my all-knowing daddy, who gave me the correct solution of taking an anti-histamine.

Pretty ladies at the party on Saturday night

 

 When my rash began to improve, we thought we might finally make our way out, and then the next problem struck. I had taken a load of painkillers in the hope that I would be able to deal with all the pain and discomfort the day might bring. I know it’s not the best plan, but it’s the only option I have if I want to get anywhere. I thought I’d cleverly pre-empted my body, however, in all the fuss about my face, I’d forgotten to eat breakfast. My pupils shrunk to a size smaller than dots on a dice (not exaggeration) and I felt too nauseated to stand up, let alone brave a car journey. After waiting for my breakfast to settle, we finally set off half an hour later than planned, but had to see the pharmacist, who of course had a long queue. By the time I finally got out of the pharmacy, I wanted to cry because I felt so bad about holding all my friends up so much. I bet they were all regretting allowing me to come.

I know it’s not a particularly exciting story, but I couldn’t think of another way to demonstrate how unpredictable my body is. I always think I’ve prepared for every eventuality and then it throws something new into the mix. I used to pride myself on being on time, and hated it when people were late, and now I’m more flakey than anyone I know, always late or cancelling with the same excuse- I wasn’t feeling very well.

Love Katie x


As my regular readers know, I’ve moved home to my parents’ house for the summer to save money, get some rest, and give Paul some help with caring for me, while I’m needing so much care. Well, so far only one of those aims is being achieved, my mummy, bless her, has been running around after me all day, especially since my bedroom is upstairs and I’m really struggling with the stairs.

 

My school friends are home, and since I never usually manage to see them, I’m trying to catch them all before they return to the various parts of the country, and so my diary cannot fit everything in. I’ve already run myself raged, and in doing so, P and I, while having a great time, have spent the same, if not more, than we usually would living in Cardiff.

 

That’s part of the reason this post is coming so late in the day. When I got home from the cinema last night, I got into pelvic pain and had to go to bed. It was a bit embarrassing because the friend I went with had a guest, but I just have to get past that. I started reading to take my mind off the pain and was asleep within a couple of minutes. I slept straight through until 11pmish when I woke up in terrible pain. Despite taking painkillers and rubbing a lot of Tiger Balm on my legs, my muscles were hurting so bad I wanted to scream. A long story short, I was awake until past 4am. I still feel rough this today but I needed to get a lot done so I had to get straight out of bed.

 

One of the main problems for me at the moment is that my parents don’t have wi-fi. While, clearly, wi-fi is a luxury, it’s causing me problems in keeping up with wedding plans and this blog in particular. Getting downstairs is painful, getting upstairs feels impossible. I do manage to do it, most of the time, with a walking stick, but it takes so long and is very painful. That means that I can’t get online until I’m well enough to get out of bed and my legs are good enough to bend to sit in a chair. I’m trying to work out a routine but because P and I have planned so many things, it’s proved very difficult.

 

My resolution then, is that after this weekend, I will start cancelling more activities (especially if they cost a lot of money), begin a to-do list to get through and get myself into a routine.

 

Wish me luck, I’m off to update the wedding website!

 

Love Katie x

P.s. I shall be eternally grateful to anyone who votes for me in the Cosmo blog awards, and send kisses to those who ask their friends to do the same.

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I love writing.

For a while my brain was so foggy and mixed up, I couldn’t think to write. Now I can write, there are so many articles, blog posts, etc swimming around in my mind and my body won’t let me write. For most of the time I have been writing this blog, I have just written through the pain. It hurts a lot, but I feel like I’ll go insane if I don’t write. I have always kept a diary for no other reason than I love writing so I hate that I can’t do that at the moment.

I’m even drinking my coffee through a straw because it hurts too much to lift it up to my lips all the time.

With enough painkillers I’ve managed to write for a while but there are times when I simply can’t. It’s hard to explain, my arms just seem to cease up like a piece of wood and refuse to move.

The timing is not great, I have the chance to write some articles for the AYME magazine and some column applications too. I’ve tried using a scribe programme. Does anyone else use Dragon? I can’t seem to get on with it. It takes so much longer to write than by hand or typing, and it just feels so awkward speaking out loud. Does it get better? I mean, will I get used to it and get faster? Or, will it always feel like I’m reading to a very deaf auntie?

I can’t handle writing anymore today.

Love Katie x



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