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Yesterday was an exhausting but wonderful day. I’ve said (or written) before on here that sometimes I do things that are far beyond what I know my body can manage, but I do them because it’s worth the pain and exhaustion during and after the event. Yesterday afternoon is a prime example. Back in the summer I purchased a voucher from Living Social for me and my best friend, R (remember her from this post?), to have a makeover and photo shoot at a studio in Cardiff.

R lives all the way in Kent so even though her birthday is in November, yesterday was the first opportunity we had to go to the studio. There was a point back in November when I thought I’d ballsed it up and that we wouldn’t be able to go at all. It was mid-Nanowrimo and I was feeling really sick, and basically I forgot to book before my voucher ran out. Thankfully, when Paul rang, the lady at Revolve was really understanding and let us book anyway. Phew.

Source: Google images

Source: Google images

As usual on an important day, my body decided to have a bad day so things didn’t go to plan yesterday. Despite resting the day before and going to bed at a reasonable time, I woke up yesterday morning feeling like I’d run three marathons the day before. I was utterly exhausted. We needed to be at the studio by 1pm and I wasn’t able to get out of bed until 12pm. Not a great start, but thanks to a higher than usual dose of painkillers and a cup of coffee that closely resembled oil, I was at least able to move quite quickly when I did get out of bed. Unfortunately, as I was on a huge high, I couldn’t think straight so I was still darting around the house like a mad thing when R arrived.

I’ve realised lately how important it is for me to eat regularly. I probably should have reached this conclusion much sooner, but it’s become apparent just how much worse I feel when I am late eating any of my three meals or skip one. I lose my appetite quite easily when I feel sick (hard to believe when you see the size of me I know) but now I make sure I eat at least a little something wholesome for breakfast and lunch each day. It wasn’t a good plan then for me to skip lunch yesterday because I didn’t have time to eat. It also meant that when we arrived home later after the photo shoot that I pigged out on high sugar and fat snacks like biscuits. Naughty naughty. This is a bad idea for anyone, but when your body puts on a stone at the sight of ice cream, it’s a really bad idea. I can add yesterday to the long list of examples which have taught me to plan ahead better so that even if I can’t think laterally Paul knows what I need and when.

Despite all of the things that went wrong, R and I arrived at the studio and, as it always does, everything worked out fine. Better than fine actually, a brilliant afternoon was had by all. I love make up but I don’t often have the energy to spend time doing it, so I love it when someone else is doing it for me. A professional make up artist choosing from their array of expensive make up is a great treat for me. Of course I love having my hair done too. I can’t lift my arms without being in a lot of pain so even if I knew how to style a beehive, I wouldn’t be able to, so any opportunity I get for someone to style my hair like that, I jump at the chance. The three times I’ve had a hairdresser style my hair into a beehive, whenever I’ve been asked how high to take it, without a second thought I answer, “as high as you can.”

Not only were all of the staff lovely and paid us compliments (never a bad thing, flattery goes a long way), the studio were really good at helping me manage my disability. Paul had told them beforehand I was disabled, but hadn’t gone into any details. The photographer picked up on what I could and couldn’t manage though by how easily I walked (using my stick and R’s arm) and made sure all the photos that included me didn’t contain any difficult poses. This was a huge improvement since the last time I was at the studio. When I went to the same studio with my sister two years before, the photographer had me sitting on the floor, doing poses that required balance, etc, even though I’d explained to her my illness. At the time I went along with it because I never want to say, “no that hurts too much.” This time, however, the only time I was standing in a photo was when I was leaning against a wall. The rest of the time I was sitting on some kind of prop or chair, but R had photos lying on the floor, and other types of poses I would have struggled with. The fact that I didn’t need to mention my illness the whole afternoon made the time so much more enjoyable. I’d never expect someone to be that aware of what I can and can’t manage, but it certainly is nice when it does happen.

Source: Google images

Source: Google images

The best bit of the afternoon though was seeing how gorgeous R looked. She is having a difficult time at the moment and definitely deserves some pampering. She is one of, if not the, most beautiful women I know. When she was having her photos taken, she actually reminded me of a model or a film star.

The hardest part was when it came to choosing our shots. R looked so wonderful in all of hers that I wanted to buy them all for her, of course monetarily, that would have meant not paying rent. I have to admit, I didn’t feel great about myself looking at the photos of me, but I wasn’t too upset since the afternoon was about giving R a great birthday treat and not about boosting my self esteem. In the end, we were able to come away with four lovely shots though, which we were both happy with. I can’t wait to put copies of the photos into frames so that I can re-live the memory of that afternoon many times over.

So, what do you think of the photos?

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Love Katie x


You may remember way back when I wrote a blog post looking for one day projects to keep me occupied, well today I decided to go even smaller and start doing five minute photography projects. These projects will consist of running around the flat taking photos on a specific theme. The idea (obviously) isn’t to take amazing photos which will one day sell for millions, the idea is to get me being creative. These projects are something which (1) bring me happiness without completely draining my energy, which is good for my depression; (2) they keep my creativity alive, which is good for my writing; and (3) give me something to get out of bed and do outside of my degree work (I plan to continue them when I am well enough to begin working again) without taking much time away from my studies.

I was inspired to start these projects by two bloggers which I will write about in due course. For now, I just want to quickly share my very raw and unedited photos with you. For me, this blog is a fun way for me to showcase what I’ve been up to but the last thing I would want to do is put readers off if they’re not very exciting for you to look at, so if you would like me to share more photos pop a comment below or tweet me, and if I don’t get much response, I won’t share future projects on here. Sound good? Ok, here’s today’s photos:

 

Famous opening line of which novel? Ten points if you guessed ‘Pride & Prejudiced’.

I LOVE Austen. What better way to read her novels than with her little face looking at you?

Quick quiz- who wrote all of these books?

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

K-K-K-Katie, K-K-K-Katie, you’re the only K-K-K-Katie I adore…

Smile for the camera!

This was sort of an accident, I didn’t mean for the Queen to be poking through an ‘m’ but sort of worked out quite well since she is your Majesty.


I’ve been struggling for what to write today. I’m so run down that I spent nearly all day in bed yesterday, resting and sleeping. Even when I was awake I was completely out of it. Sometimes I just lose whole days like that. I’m doing marginally better today. I’ve managed to get to see the doctor today about my skin so hopefully it will begin to improve in the next few days. My mum always says she knows when I’m run down because my skin gets really bad. I’m hoping a slow couple of days will help. Well, mainly slow…

I am also very excited and hoping I feel energetic enough for my first hen party with school friends tomorrow night. I feel like a teenager having a sleepover again, my mummy has bought pizzas and sweets for me, and we’re clearing up the house ready for the girls to arrive. And, on Friday, P and I are going to get our marriage licence. I wanted to have a nice picture of that morning, even though I imagine it will simply be Paul signing a piece of paper and us handing over a lot of money for it. I wanted to have pictures of every part of the wedding, but it’s been ruined somewhat by my horrid red, itchy face.

 

Oh well, I have long given up caring how I look in photos, it’s been a while since I recognised myself. You just have to not let it get to you, remember the good time the photo represents, and forget the vanity of your appearance.

 

Love Katie x


I never used to be a major fan of technology growing up, my parents couldn’t afford to buy the latest thing and I’m a sentimental collectamaniac, who would rather clutter up places with printed photos than keep them on a CD. When I bought a laptop with my savings before I began university, the idea of keeping my journals in a word document to save the pain in my hands caused by writing seemed ludicrous. I’m not a luddite, don’t get me wrong, I don’t hate technology, I’ve just never really wanted it unless I needed it. When I recently answered a survey about technology then, I was surprised to see how much I and Paul now collectively own. Each item has sneaked up on us, bought or given mainly to help because of the worsening of my symptoms, apart from our iPhones which were perhaps the worst and best things we’ve ever gotten.

A Spoonies* Guide to Gadgets

  • iPod: Other than listening to music for entertainment, my iPod is a vital part of my emergency purse, which I carry everywhere. My emergency purse contains everything I need to control bad pain episodes.I listen to music or meditations (which I have found to be useful) to help distract my mind from the pain I’m in. If that fails, I listen to audiobooks.
  • Kindle: This was one of the hardest things to get used to. Yes, I am sentimental, especially about books. When Paul found out what a bibliophile was, he felt there had never been a better explanation for the reason that books take up the vast majority of our tiny flat. When I found out that I could read textbooks for university on it, as well as PDFs of journal articles, it seemed the best way to spend a big chunk of my book allowance from my DSA. A Kindle is light enough for me to hold or rest of something (usually a pillow when I’m in bed) so I don’t have to hold it all.Even when my arms don’t hurt too much to hold a book in position (which is never with a textbook), my arms shake so much, it’s just annoying to read. Not to mention, a Kindle is so easy to carry! Can you believe that I even get muscle spasms in my eyes? Well I do, so finding a screen that made it easier on my eyes to read than a page, felt like a God send.
  • iPad: More Apple products! Can you tell we’re fans? We bought an iPad with our savings, and the help of a friend who worked there, when it became too painful for my arms to hold my laptop. It had gotten to the point where I had to wait for Paul to come home from a lecture to begin working because I wasn’t able to get my laptop out myself. Few people believe that’s the reason, but it was painful for us to part with that much cash we had hoped to use it for travelling.
  • Audible account: I’ve already mentioned that I listen to audiobooks when I’m in pain. I also listen to audio books when I’m not able to read at all since I love reading everyday. With an Audible account, we can download audio books to make into CDs or for any compatible device, for a fraction of the cost of buying them individually.

So now you know it would be very much worth mugging me, I’m gadget girl!

Love Katie x

 

*What is a spoonie? A spoonie is a term taken on by the online community of people fighting chronic illnesses. Look out for a future post on the Spoon Theory.


When I went to Amsterdam a few years ago, I was pleasantly surprised by most things, but one thing let the city down. One of my favourite Van Gogh paintings- The Room- was in restoration so I couldn’t see it. This is one of my favourite paintings because it makes what one could see as a dire scene, beautiful. Van Gogh takes his surroundings and makes them into beautiful paintings. What others missed in their everyday environment, he saw. Maybe this is because of his own illness and the time he spent in hospitals.

Van Gogh- Room
Source: Google Images

Inspired by Van Gogh, I’ve been trying to see my own environment in a new way. I’m not really able to paint or draw, partly because of skill, partly because of muscular pain, so I’ve been using my Lomography camera to take pictures when I’m able to leave the house, but also for the first time, of things inside the flat. I got one film processed yesterday, and there are not many great photos but I’ve managed to see the good bits in a few.

(Unfortunately I don’t have a scanner so these are photos of photos)

Self portrait

  

Barker Lounge
A coffee bar I visited this week

 

 

 

 

 

 

 

 

 

 

 

 

And some better photos I took last summer:

Three Cliffs Bay, Gower

Ruin in Gower

Cardiff Bay

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Love Katie x



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