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While I’ve been stuck in bed the past few months, I’ve spent a lot of time on the internet, reading blogs, watching YouTube and finding interesting people on Twitter. It’s struck me in the past week or so how many of the spoonies I “follow” online manage to achieve a lot, in spite of their illness. In some cases, they’ve used their illness to their advantage. As thoughts about this were swirling around my mind one night, I pondered how these women manage to do so much, when I seem to do so little. Was it because they weren’t as sick as me? Possibly, but that’s not the whole story. After much deliberation, I decided it was because they weren’t afraid to admit they had dreams and begin taking baby steps towards achieving them.

Failing yet again

When this academic year began, I had set my mind to focus on getting through my studies, it’s no surprise then that I fell into a depression when I got so sick again. Seeing weeks go by without my being able to study has been really difficult. I love learning, since I can remember, all I’ve wanted to do was go to university, and I love learning about politics. In a way, having tried so hard for so long to get through my degree only to keep “failing” at completing modules has just made me afraid to try anything else. I wouldn’t admit it out loud but my subconscious was saying, “why bother trying to do something you love? Your illness will only ruin it anyway.” I’ve been making plans but the majority of them have begun with the sentence, “when I’m well enough…”, which just isn’t happening.

Don’t misunderstand me, I haven’t given up on university, I will find a way to complete my degree, and I certainly haven’t given up the belief that I’ll get better, but I’m done waiting around for life to begin. That’s how Paul and I have felt, we’ve pushed ourselves to complete things, and life itself has been a real struggle for a long time, but when it comes to deepest desires, the things that mean the most to us, we’ve popped them on a shelf for “one day”. In a way, that’s allowing my illness to control us, the fear that we might only get one chance and that my illness will blow it for us, has prevented us from doing some things. There’s a certain amount of wisdom in that, but there’s been a lot of fear in that too.

Vintage pocket watch with open lid and chain on wooden surface

Making changes

This week we took the plunge and used some of our savings to book a holiday. The idea that we need to save for a rainy day has always been on our minds, and while that is generally a good principle to have, it’s made us afraid to spend any of our savings. Since we first became a couple and I got sick, we’ve been talking about going to Paris, and therefore, we’ve never wanted to spend our money on going anywhere else, because what if we can never save enough to go? Paris will still be there in future years when it is the right time for us to go, and I’m not going to believe that we’ll never get to go there if we go on holiday somewhere else. We know that we both need a holiday and we’d love to have a belated honeymoon. After all, lots of people generously gave us Euros at our wedding for that purpose. As we were chatting away about this, we both came to the realisation that although we’d love to go to a city and have an adventure, we’re both exhausted and what we really need is some time away somewhere hot, with a pool, and a beach. That’s what we did. We’ve booked a last minute holiday to Gran Canaria for a week. The fear that I felt when I clicked the little button to pay online was ridiculous, which made me all the more certain I was doing the right thing. It’s not like we’ve spent all of our savings on a crazy extravagant holiday that I obviously can’t manage. We booked something nice, albeit the cheapest place we could book, with disabled access. I don’t think I need to say any more to prove quite how unfounded my fears are.

Maspalomas, Gran Canaria

Having bitten the bullet on spending savings on a holiday, I’m determined to keep making progress on my dreams. I think putting all my eggs into the university basket was a mistake, and not one I’m going to repeat. What’s most important though is that I stop making my own contingency plans and start seeking God’s plan for my life. It might not be the most comfortable life, but I know it will be the most fulfilling life. Right now Paul and I are praying into our future and asking God where He wants us to step out in faith. Watch this space for more exciting adventures.

Love Katie x


I recently read a blog by one of my great friends, Sian Cooke, which inspired me so much I opened up a blank document, the second I read the last full stop. Her blog post was about not allowing the mundane to plague your life.  Right now I’m in a difficult patch, as I talked about in my last post, and when you’re in a situation like this it seems like the best thing to do is to bring down the hatches and do nothing other than what is necessary. The temptation is to adopt the victim stance.

I’m not planning on doing either of those things though. I’m not going to pile on too much and make the situation worse, but I won’t be sticking to the mundane, and abandoning my love of curiousity and doing new things. As best as we can, P and I are sticking to weekly dates and I’m looking for at least one new thing to do each week. I’m not feeling sorry for myself, instead I’m focusing on everything I am thankful for. I am being honest about the situation I am in, without allowing it to control me. I cannot control mine and P’s sickness but I can control my response to it.

I will…

  •  keep the romance alive in my marriage
  • stay passionate and enthusiastic about my degree
  • do my best to give as well as take in my friendships
  • fill my days with fun and laughter
  • love my God and put him at the centre of my life. I will continue to trust that His plan for my life is the best plan, and trust that He can use all my suffering for good.

Don’t give in to your sickness, take back control! Now is not the time to give up, it’s time to fight harder than ever for the life you want.

 

Love Katie x


Oh boy do I have a lot to tell you! I have quite a few blog posts stored up in the tattered notebook in my mind which I hope I can transfer onto screen in the coming week. This post, however, as the name suggests, will focus on an extraordinary experience I had this week.

This week I went back to lectures after the long exam period (there’s another there). As I’ve mentioned countless times before on here, I love studying. I am not like other students who hate going to lectures, I excitedly try ad soak up everything my lecturer has to say. Yes, I am a geek.

I had to spend all Sunday and most of Saturday in bed so I thought my body would be eager to get up and about by Monday morning. No deal. I woke up Monday morning feeling awful. Paul helped me struggle through breakfast and getting dressed, feeding me my favourite cereal and coffee. He is amazing, what a hero.  when he could see that it was becoming more and more evident that I was not going to be able to drive my mobility scooter to university (bare in mind we live less than 4 minutes away , I’ve timed it), he did what we should have done in the first place – prayed. this brought a smile to my face. I know that I have a God who always has my best interests at heart. I find it incredible that I could trust my Heavenly Father completely and yet forget to put my day in his hands.

Anyway back to the story. Paul placed his hands on me and prayed that I would not only manage to get to my lecture but also that I would be able to concentrate on what the lecturer was saying. Just over an hour later he picked me up from my first lecture of the day. I had a giant smile on my face.

“It was so good, I loved it. I felt fine and could take it all in. I think I took really good notes too” I told P, a bit too loudly.

I went to two lectures yesterday, one today and I managed 40 minutes of work this morning too. This is incredible. The cynics among you might think that I am just experiencing a placebo effect or something. I am not saying I am completely healed, I still need my painkillers, and I needed a nap yesterday too, but I cannot think of another word to describe what is happening other then ‘miracle’. I have not even been able to mange 10 minutes of concentration for over a month, I’ve tried so many times and now all of a sudden I can attend lectures and read journal articles. Amazing.

I don’t know whether this is a beginning of a complete healing or whether this partial healing will only last a set amount of time. I know that  I have a God who I am trust and if I put my life in his hands will use all the pain, exhaustion, frustration and tear for something great.

I decided to share this experience on here to bring you hope. I know many of my readers are sick themselves or maybe you’re in another type of situation that you need breakthrough in. I know this post might make you uncomfortable, there’s a lot of pain and emotion associated with healing. I know because I’ve been and am still going through it myself. The disappointment of not being healed can make you want to give up. It seems to take up too much energy to keep trusting and hoping. If we stop believing though, we give in, our sickness wins.

Bible says we are more than conquerors. If you put your trust in God, He might not take your life where you want it to go or might not intervene in the way you want Him to but you can be certain that His plan is the best plan. That’s why, even though I want to be well and healthy, I know that I am in the right place, I have complete faith in him.

If this answer to Paul’s prayer has taught me anything its that I need to pray every morning and put my day in his hands.

Love Katie x


 November has very much been an emotional and physical rollacoaster. I feel very lucky to have a fantastic husband and some great friends who were willing to patiently ride it with me.

Regular readers will know that I participated in National Novel Writing Month last month, I am sure you will all be pleased to hear that I completed my novel! I am very proud of my accomplishment, it makes me realise how much I can achieve with my writing with the right amount of dedication. I am very thankful to my friends who sent me messages of encouragement and to my husband who put my laptop in front of me even when I resisted.

It was very difficult for me to write 50,000 words in such a short space of time. ..

This is as far as I have got in writing an update blog post. I am seriously struggling with motivation at the moment. My body is exhausted and every time I do something I have to stay in bed for days on end to recover. That doesn’t exactly inspire me to go places or work hard.

I have so much to be thankful for, the last two weeks in particular have been jam packed with treats, presents and wonderful events, and yet I do not want to get out of bed. I should be on top of the world right now. I don’t know completely whether it’s my body or my depression. I certainly struggle when I do get out of bed, not just struggled, I have to really fight to get up but I’m not doing anything while I’m in bed either. My pain levels are really bad and I’m not sleeping much, but I don’t feel like I want to look after myself at all, I would happily hide away from the world. Perhaps there isn’t one problem, it’s most likely to be a combination of both depression and sickness. Usually I would fight these kinds of emotions and thoughts by throwing myself into social events and university work, but my physical illness is holding me back. What is clear is that I need to push past my physical problems if I want to stay on track with my university course.

Even though I barely began my ‘catch up’ post I wanted to put it up to show you where I am right now. A bit lost and struggling to work on anything, least of all my university work, which I am desperately behind with. I will continue to attempt to force myself out of this though, I know that God is close, and will bring me through this deep valley.

Love Katie x

 


Well you’ve probably been wondering where the heck my blog post about my wedding is. The reason there has been a lack of posts on here is that I had a REALLY bad couple of days. Just as I was getting ready to write a post about the progress I’ve made since I began writing this blog, there was a another whack of a “bad patch”.

During these few days I was listening to a preach online from my Church about personal progress. Chris Cooke (senior leader at Freedom Church) talked about the importance of momentum, to keep taking each little step because it is so much harder to begin again once you’ve stopped. I am climbing the hill of recovery into full health and I can’t stop because of a few days.
Yesterday was the first day of lectures and I felt so ill that I just wanted to stay in bed. Those horrid thoughts of just staying in bed forever so that I don’t have to go through the pain and exhaustion came, but I didn’t want to give up my progress. I reminded myself of why I am trying to do my degree, why Paul has given so much so that I can get to university and learn about politics, and I forced myself to go.
I don’t want anyone to misread this as me saying that staying in bed is a weak option and that if everyone who suffered from CFS and Fibromyalgia just pushed themselves they could get out of bed. The trick to recovery from chronic illnesses is to know when to give in and when to push.  I literally didn’t get out of bed, except to go to the toilet on Saturday and Sunday. Those days I needed to stay in bed and rest, my body was in a really bad state and needed a lot of sleep. Even on Monday I still did sleep and rest a lot, but I pushed my body to leave the house for two hours. That’s a smart thing to do when you can feel that your body is ready to begin the fight.
I don’t know whether any of this makes sense to someone who hasn’t suffered from these illnesses, but what I’m trying to say is that I’m in a new phase. I gave my body about four months of rest and now it is ready to begin the steady (and sometimes steep) incline back to health. My daddy was talking to me about this last week (you might remember that my dad too has a lot of health problems) and he reminded me that I won’t glide back into health easily but that I’ll have to fight for it. It’s going to hurt some days, and I’m going to have set backs, but I know that eventually my days where I “win” like yesterday will begin to increase and increase, and the “bad” days will lessen.

I have good reason for this solid conviction of recovery. I have had a lot of prayer and have had two very strong prophecies of health in my future. I know that the people who gave me these prophecies wouldn’t pass on these words from God unless they had real conviction of their truth. Something so personal and sensitive isn’t taken lightly. It can be hard to believe for something like that when you’re in a valley of pain, but faith is seeing beyond your current circumstance and I do believe I will be healed. I don’t think it will be a miraculous healing (although I’m not ruling it out), I think that as I grow into the woman (and Paul grows into the man) God intends me to be, so too will my health be released for the exciting adventure God has for me and my husband.
Cue Eye of the Tiger….

Love Katie x

p.s. If you want the preach I mentioned (which is called The Great Locomotive: Hurtling Along the Edge of Chaos), you listen to it as a podcast here.


I recently saw the above picture on one on my favourite blogs- Victoria Writes- and it, along with Victoria’s post struck with a chord with me. To say my posts on here have been sparse would be a gross overstatement, due to the fact that I haven’t felt up to writing. In a lot of ways, my health has improved since I began this blog, at least I’m able to leave the house a lot. In other areas, such as my concentration, the amount I’m sleeping, and my ability to study/write has remained the same or declined. I have half written many blog posts and stories in my mind, but whenever I have tried to put pen to paper or finger to keyboard, my energy has just felt too sapped. I am still spending all my time in bed when I am at home. Unlike before, I haven’t been able to read or write barely at all though. Thinking that it was just some of kind of mental block, I resolved to write through it a couple of days ago. I forced out words onto the page of my journal, but only managed a couple of sentences before I needed to sleep. Even now, the words feel forced, incoherent and unflowing, but hey, I’ve managed a lot more than before!

Anyway, these difficulties have left me very frustrated with this blog. Just as my readership was doing well and I was getting new readers from the Cosmo Blog Awards, I’ve stopped writing. I did begin to wonder whether the blog has run its course, but now I’m reconsidering. Maybe my blog has left the infancy of the days when the blog posts seem to write themselves and now it’s being ushered into a new chapter. A lot will be changing for me in the next couple of weeks- I’ll be resitting my second year, having failed to sit even one exam this summer, and biggest of all I’ll be starting married life! And, there is so much of my life which has been missed out in the last couple of weeks. For instance, you must be wondering how the heck two students, one with severe chronic conditions, plan and pay for a wedding. And, what will our honeymoon look like? Even as I’m writing this post, I’m becoming more convinced that Chronic Katie is far from being over. There is so much more I have to tell about what living with a chronic illness is like, particularly in areas which, to my knowledge, have never been discussed in public- student life in university, the benefits process, roles within marriage, how to be a wife, and even sex. Sometimes the path I have yet to pave seems daunting when I think about all that is ahead, but when I consider the fact that I’ll have God with me, I just get excited for all the opportunities I have ahead of me.

I hope you’ll keep reading to see where this Chronic Katie’s life goes next.

Love Katie x

p.s. The Cosmo Blog Awards voting closes this Friday 31st August. Please, if you enjoy this blog, consider voting for me in the Lifestyle Blog section, and help me spread awareness about life with chronic illness. A huge thank you to those of you who have already voted, whatever the results, I appreciate each and every vote.


A good way to summarise my time at home so far would be to quote the famous words from a song from the show Annie:

Just thinkin’ about tomorrow
Clears away the cobwebs,
And the sorrow
‘Til there’s none!
When I’m stuck with a day
That’s gray,
And lonely,
I just stick out my chin
And Grin,
And Say,
Oh
The sun’ll come out
Tomorrow
So ya gotta hang on
‘Til tomorrow

No I’m not referring to the weather, but my ability to work for my exam I intend to take later this month. Despite the weeks of rest I’ve had since I began writing this blog, I have only been able to work on a few rare days. The suitcase of notes and books I brought here with me sits gaining dust, and I find myself still saying, “tomorrow I’ll be able to begin revising”. My exam is now only two weeks away, and I am at the height of my frustration.

I know many people would be quick to advise and criticise me. The usual remarks are that I should have gone out less or that I should try harder. I still find it unbelievable that after all I have achieved academically people still feel they know better, having had no experience of this illness. Concentrating on degree level work is much more demanding than the concentration required to write this blog post or watch a film. And, in regards to rest, yes, when I do go out I do get very unwell and have to rest, but in case it hasn’t become plainly obvious, M.E. does improve on rest. I choose to have some semblence of a life, if going out or seeing people once or twice a week is too much then I can wave goodbye to my sanity. It’s not as though I’ve gone out to clubs or attended endless parties, excluding that one or two weeks where I had a packed diary, I have barely done anything socially. The bed rock of the issue is that my illness does not improve by my resting. It reduces certain symptoms when I rest and it makes me rest, but it’s impossible for a long sleep to improve my condition, except if I’m recovering from having over done it. 

M.E. or CFS is caused by the body’s inability to rest properly, that’s a medical fact. My body never has a good night’s sleep. All I can do is wait for my body to improve and do the best I can to help facilitate that through pacing myself. I am always dumbfounded when I meet people who think that they could possibly have the answer that no research or doctor has ever thought of- trying to do something, perhaps begin with dusting or hoovering. As if I don’t want to do that every single day, the desire I have to walk when I wake up in the morning is so strong. Sometimes that advice is given out of genuine concern, but often it is given out of the idea that there really is nothing wrong with me. When you drill down to the fundamentals, it is arrogance that makes a person think they could know better than my doctor, and that is their issue, not mine. I try to ignore these kind of people, I am trying to grow thicker skinned.

But, back to the real point of this blog post. I will continue to be always waiting on tomorrow. Doing my best to help my body today, in the hope that tomorrow will bring more energy.

Love Katie x

Have you enjoyed reading this blog post? Please consider voting for ‘Chronic Katie’ in the Cosmo Lifestyle Blog Awards 2012. For more info click here.


Feeling a bit more awake today. The good thing about the last two days is part of the reason I’ve been too busy to write is because I’ve got to see friends. I hate to cancel one appointment to see a friend on Monday…wait appointment sounds like he’s my doctor, you know what I mean. It sucked that I had to cancel seeing him but I really needed a bath and I was just so wiped out after, I just needed a really long nap.

On Wednesday, I got to hang out with an old friend (am I old enough to say that?), who I haven’t seen for years. I’ve missed her a lot. We used to spend so much time together, it was like nothing had changed when we met up, just a different setting. You must be wondering how we grew apart then? I lost touch with nearly all my school friends before I moved to Cardiff. You try to send the odd text or Facebook message but it’s not the same as face-to-face interaction. I was too sick to leave my bed the summer after my ‘a’ levels so I easily became alienated. I haven’t been able to visit any of my friends in university, the traveling is just too tough, and Paul would need to come with me. It just seemed like I became one of those girls who only hung out with her boyfriend and wouldn’t go anywhere without him. It was nothing like that though, I was terrified of the pain I experienced coming back, and I needed him there if it did. After the first year of university I had to start using the wheelchair, and then I felt like it would be weird to hang out with them, and not exactly practical.

For a long time I didn’t like any photos of myself in a wheelchair, this is one of the first I actually liked

I was really self-conscious when I started using a wheelchair all the time. Since I could walk, I felt like a fraud and was in the way. I felt terrible that Paul had to take me everywhere. Plus, most of my family thought I was giving up and settling for a wheelchair, rather than fighting to get better. I hate being in a wheelchair but it’s either that or not leave the house. I am so glad I had Paul’s support, and man power to push me. Going into a wheelchair was fighting to have a life, it was swallowing my pride so I could stay in university, instead of stuck in bed. My biggest fear, and to be fair, my family’s biggest fear is that once I started using it regularly, I wouldn’t ever be able to cope without a wheelchair. Only time will tell if that fear will ring true…

Yes, there are a few perks of being in a wheelchair, but nothing makes up for being able to walk. Don’t underestimate the luxury of being able to go where ever you want, without having to check whether it’s disabled accessible. Or having people’s judging eyes on you if you stand up when you’re in a wheelchair.

I miss being able to hold hands with Paul, go for walks in the countryside, and being able to travel. Using public transport is a nightmare, in fact, it’s almost impossible. I’ll tell you all my stories another time. Most of all the independence to go out on my own. Of course, this isn’t everyone’s experience of being in a wheelchair, I am just explaining mine. I’d love to just be able to go out on my own, wander around a gallery or go shopping. I feel like a child.

Maybe God let me get into a wheelchair so I could understand the frustrations and prejudice. Who knows what His plans are, but I know that He can use these experiences.

Love Katie x


Some of the more discerning readers among you will have noticed that I have mentioned God a couple of times in my posts. Congratulations Sherlock, you’re correct, I am a Christian. I decided to re-commit my life to God last August (2011). Some people make the assumption that my faith gives me a nice cushion to rest on when I need to think that all my pain will be worth something or that I’ll have a better life in Heaven. Yes, that is part of what God has given me, a peace of mind that He can use what I’m going through, but that’s not the whole picture.

Paul began fighting to get better and for a better life for us when we started going to Church

actually stayed away from Church and acknowledging God properly for a couple of years before last summer because I had some pre-conceived ideas. I thought that coming to Him would mean ruining my relationship with Paul. In my mind, I needed to live with Paul (and wanted to) and being a part of a Church and having a relationship with God would mean changing that, ere go I couldn’t be a Christian. Because of the guilt I had laid on myself when I was a Christian before, I had come to believe that God was the kind of figure who really loved me but there were lines that couldn’t be crossed and I had crossed them and didn’t want to hop back to the other side. I didn’t want to go back to living a double life- a life where I loved God and had a great relationship with Him, and the life where I had a great relationship with Paul. It never occurred to me that God didn’t care whether we had a legal piece of paper, we were committed like a married couple (this is before we were engaged) and intended to get married one day. I knew for sure in my gut that I was meant to marry Paul. Why would God be against that?

Anyway, that was just part of the deal. The other part was dealing with how I felt about my illness. I have never given in or tried to stop getting better. I’ve rehabilitated myself before so I know, when my body is ready, I can do it again. I had become comfortable in the life I had though, staying in reading or writing most of time, going to the cinema, and having coffee with friends. I had my degree and political activism too so it wasn’t like my world had become just myself, but there is something wrong when you accept this is all you’ll ever have. No matter what your age, the best is always to come. I’ve talked before about how I thought my glory days had been and gone. I needed to have hope that I could do more, that my life could be more than trying to struggle through each day, and doing what I could for others when I could. Because of the combination of my illness and Paul’s depression, we really were just muddling through each day. If there was cutlery in the drawer, dinner on the table and I had got out of bed, we were doing incredibly well. By the time August 2011 rolled around, I was doing ok health-wise, it looked set that I was actually going to pass my first year, but Paul was…not in a good place. I had no idea how he was going to get through his own studies, let alone help me in the next academic year. The only thing getting him out of bed was the thought that if he didn’t help me, I’d be in incredible pain. But, somehow we weren’t in despair. We both came from families used to dealing with stuff like this so we were just getting on with things, doing the best we could.

Giving out free hugs in Brugge

Admitting God could have more for us, that felt a bit uncomfortable. I didn’t want to hope for Paul to get better, or for my health to improve, or to make any hopes or dreams for the future, because I’d been disappointed too much in the past. Doing that would leave me vulnerable for hurt, that once again things would not work out. There’s so much more to the story, but I think you get the picture. I didn’t come to God because I needed a shoulder to cry on, I was done crying, and just getting on with my life. I would say I didn’t even feel I needed Him. My faith is a motivator, it challenges me. This year, I went to Brugge to help plant a Church. I know that that journey there alone should be nowhere near possible for me to handle. I can barely manage the trip home to my parents’ house which is about an hour and 40 minutes away. But, I know that God provides what I need to follow His will. That can sound like He’s saying, it’s my way or you’re sick, but that’s not what I mean. God’s plan is in line with what I really want. I loved every second of my trip to Brugge.

I’ve gotten a bit off track now. I’m just trying to explain that part of my faith is comfort and peace of mind, but the other part is passion, hope, motivation, stepping out in faith before the details are set. It’s frustrating in some ways writing this blog post because I can’t possibly explain my story fully and I know that leaves me open to people picking holes. I also know that some readers may be suspicious of why I’m writing about this, thinking I’m trying to pick on vulnerable people and win them to my faith. I haven’t preached, I’ve just written about my faith. When I began writing this blog, I said I would be honest and raw, laying intimate details of my life bare, if that’s what it took to tell the whole truth about living with a chronic illness, I’m sticking to that. My faith is a huge part of my life, I couldn’t write a daily blog about my life without including that. I’m open to questions or comments on this post on my faith, just be aware that this isn’t a Q&A about questions of suffering or anything else, because I couldn’t give a full answer in a comment box. I’d love to talk more about my story though.

Love Katie x

For those of you who are interested, Paul and I go to Freedom Church. You can check out their website here, which has preaches, music videos, etc, and you can download podcasts of more recent preaches (including one on depression) here.


I had an important visit to a coffee shop yesterday. You may be wondering how someone so sick could manage to write two blogs alongside a degree she is struggling to complete. That is because at the moment I am not studying. For the past few months I have been far too sick. For a couple of weeks I wasn’t able to use a computer, and some days I couldn’t even stand the light. It is still really difficult for me to use the computer but I can’t stand doing nothing anymore.

I came to university because I love to study. I was actually excited about my library tour when I arrived as a fresher. I love books and just want to soak up all their knowledge. I wanted to have a track record of 100% attendance at lectures and seminars but I’m having a ‘good’ week if I make half of my timetabled teaching slots. Not only that, but I want to get the most out of university life, to be active in societies, political campaigns and grab every opportunity, but that’s just not possible. What’s even worse is that my illness means that that’s also not possible for Paul.

Anyway, back to my visit to the coffee shop, at the moment I am just nowhere near well enough to be studying for my exams. I can’t concentrate on anything more complex than a novel. The afore mentioned visit to Costa was to meet with my personal tutor. Having had to put back essays and exams, and already having re-sat a year because of my health, I know the system inside out. So, here I was once again, sipping my vanilla latte (which my tutor was kind enough to buy for me), telling him I was worse than ever, and relaying my latest plan of action to get through my degree. I’m hoping to sit some of my exams later this summer, and then…. re-sit my second year. Sigh. I can’t explain how little I want to do this, but I have no choice.

 

I do like using pink when I make notes…

I have to shelve all my excitement for my dissertation and graduating with friends, and put all the fears Paul and I now have for my third year out of my mind. Because I’m re-sitting my year, Paul will now graduate a year before me. This means that he’d be insanely lucky to be able to get a job where he’d still be able to take me to university. It sounds simple but there are so many things that Paul does to help me be able to study, he won’t be able to do that and hold down a job. Considering I have £600 student loan after rent (not including bills) every 4 months, there’s no way we’ll be able to cope without him having a job. Like I said there is no point worrying about these things, they’re another year away, it’s just part of the reasons I wanted to avoid re-sitting my year. Making it formal that I’m re-sitting has made me feel sad, but it would be futile to wallow. I’m just going to try to focus on getting better so I can sit some of my exams in August and reduce my work load in my re-sit year. I know that God will use this extra year for something great. There are some positive things that have come out of my illness. It is just so frustrating when it comes to my degree. There is no way I am giving up, even if it takes me 20 years to complete my degree. And, at least I got a free coffee…

Love Katie x



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