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Source: Google images

Source: Google images

Happy new year from the Davieses!

Blwyddyn Newydd Dda wrth yr Davieses!

(Paul, Didi & me) 

I would have loved to spend NYE with family, but for several reasons we couldn’t. Instead we enjoyed a quiet night just the three of us. Should I be counting my kitten? The day before, after a bit of internet searching I had found a couple of ideas to make our night fun, but low in energy expenditure. I saw a great idea on one forum, to eat healthy snacks instead of junk food, on the basis that you would wake up on 1st January feeling like you had already gotten back on track with a balanced diet after Christmas. I took this idea and ran with it. We had a yummy fruit platter, started a puzzle, played one of our new games (great Christmas present) and watched a film on iplayer. We spent the night doing things we enjoyed, without compromising my health. This meant that I woke up today, able to start 2013 the way I want it to continue, able to utilise my energy to work on my degree.

I was saddened to see many people on Facebook and Twitter writing negative messages about 2012. I know that for many people, there are a lot of bad memories associated with the last year, but I also know that most of these people had so many things to celebrate and be thankful for too. For P and I, the last year hasn’t always been easy, my health especially has deteriorated, which is both frustrating and de-moralising, but we would rather focus on all the fantastic things that happened over the last year, from the little things like the time we managed to go to the park, to the huge things, we got married. Of course, we have more to celebrate than a lot of people because we got married, one of the best things to happen to anyone.

Nothing like a night in with these two crazy cats

Nothing like a night in with these two crazy cats

I do believe the best is yet to come though, I don’t say that just because we’re young and I think I’ll get better, but because I know that God never provides a dull life. I can’t think of a single person I know who has a close relationship with God and a boring life. A life of adventure awaits all of us. Sometimes that adventure takes us through valleys, but even those awful times can have purpose when put into the hands of our Creator. Just writing these things makes me so excited for what lies ahead for me and Paul this year. Part of me is terrified, P is due to complete his degree this year, which throws up so many questions about how we will manage my health and stay financially afloat, but when I look in the Bible, I see that I have nothing to fear as long as I have God with me.

Many of people would have hated to spend NYE the way I did, but I felt perfectly contented. It’s easy to become disheartened because of all of things we don’t have,  but it’s difficult not to feel blessed when you count all of the things you do have. We should never take the basics like a roof over our head and food on the table for granted. The headlines of increasing unemployment and homelessness should teach us that.

At midnight, we tuned into BBC1 because I love fireworks. I might not be able to attend the Calennig celebrations in Cardiff, but I can see the wonderful firework display in London on my laptop. My favourites are the ones which follow the London Eye around in a circle. One year they used the Eye as a countdown clock for the last 60 seconds of the year. Amazing. With a big grin on my face, I kissed my husband at midnight, and thanked God for blessing me with such a wonderful partner for life.

Source: Google images

Source: Google images

Thank you so much for reading my blog in 2012, I hope you will continue to do so this year. I want to take Chronically Katie further this year, to raise even more awareness about invisible illnesses. This cause is more important than ever before, as the pages of the newspaper fill with articles persecuting patients and my inbox fills with desperate stories of those who are refused benefits and care. Please help me to help disspell the myths and misunderstandings so that fighters of invisible illnesses can get the care and support they both need and deserve.

Love Katie x


Check the clock on the right-hand panel.

That’s right, there’s only 16 days until my wedding. Today I am finding it hard to write, not because of my health, but because I am bursting with excitement! If you’re a regular reader then you’ll know that me and my beau are paying for our wedding almost entirely alone, and that the afore mentioned beau hasn’t been able to work much over the summer. In addition, my DLA is up for re-assessment, but it is taking me months to work through the form, so we don’t have that as an income either. The reason I am giving you this somewhat tedious update on my finances to explain the reason why Paul and I have changed our honeymoon plans. We would have liked to have to Paris, but we don’t have enough money so we have a new plan.

We have been lucky enough to have been given two nights at a very swanky hotel for the evening of and after our wedding. Then, we will travel to a friend’s house to stay as long as we like while they are away. And, if the weather is nice, we hope to go camping for a couple of nights too. We are both so flipping excited about this alternative honeymoon.

We are leaving Cardiff soon to go back to my parent’s house for the wedding so in the next two to three days we have to pack for our honeymoon. This involves a bit of planning. We don’t want to make too many plans, I’m not going to make a rigid schedule, especially because part of the reason why the new honeymoon plan is so great is because it allows us to actually relax.

On the other hand, we also don’t want to just end up doing what we would do at home either, so we need to think up some activities so that we can make the most of our time together with no distractions. We’ll be staying out of the city, in a small coastal town so I already have romantic walks and picnics on the list. And, obviously, mobile phones and social networking is banned. I was hoping though, that you, my lovely readers, might come up some good ideas or share your experiences, whether or not you’ve been on honeymoon.

What would you recommend we do on our honeymoon? And, any packing suggestions or tips?

Love Katie x

 

Have you enjoyed this post? Please consider voting for Chronic Katie to win the Cosmo Lifestyle Blog Awards by following the instructions here.


I recently saw the above picture on one on my favourite blogs- Victoria Writes- and it, along with Victoria’s post struck with a chord with me. To say my posts on here have been sparse would be a gross overstatement, due to the fact that I haven’t felt up to writing. In a lot of ways, my health has improved since I began this blog, at least I’m able to leave the house a lot. In other areas, such as my concentration, the amount I’m sleeping, and my ability to study/write has remained the same or declined. I have half written many blog posts and stories in my mind, but whenever I have tried to put pen to paper or finger to keyboard, my energy has just felt too sapped. I am still spending all my time in bed when I am at home. Unlike before, I haven’t been able to read or write barely at all though. Thinking that it was just some of kind of mental block, I resolved to write through it a couple of days ago. I forced out words onto the page of my journal, but only managed a couple of sentences before I needed to sleep. Even now, the words feel forced, incoherent and unflowing, but hey, I’ve managed a lot more than before!

Anyway, these difficulties have left me very frustrated with this blog. Just as my readership was doing well and I was getting new readers from the Cosmo Blog Awards, I’ve stopped writing. I did begin to wonder whether the blog has run its course, but now I’m reconsidering. Maybe my blog has left the infancy of the days when the blog posts seem to write themselves and now it’s being ushered into a new chapter. A lot will be changing for me in the next couple of weeks- I’ll be resitting my second year, having failed to sit even one exam this summer, and biggest of all I’ll be starting married life! And, there is so much of my life which has been missed out in the last couple of weeks. For instance, you must be wondering how the heck two students, one with severe chronic conditions, plan and pay for a wedding. And, what will our honeymoon look like? Even as I’m writing this post, I’m becoming more convinced that Chronic Katie is far from being over. There is so much more I have to tell about what living with a chronic illness is like, particularly in areas which, to my knowledge, have never been discussed in public- student life in university, the benefits process, roles within marriage, how to be a wife, and even sex. Sometimes the path I have yet to pave seems daunting when I think about all that is ahead, but when I consider the fact that I’ll have God with me, I just get excited for all the opportunities I have ahead of me.

I hope you’ll keep reading to see where this Chronic Katie’s life goes next.

Love Katie x

p.s. The Cosmo Blog Awards voting closes this Friday 31st August. Please, if you enjoy this blog, consider voting for me in the Lifestyle Blog section, and help me spread awareness about life with chronic illness. A huge thank you to those of you who have already voted, whatever the results, I appreciate each and every vote.


Image source: whatsfab.ca

Today has been a much better day. For one thing I’ve managed to not only get out of bed but also get dressed. P needed to go to the train station today so mum and I thought we’d use the opportunity of being in town to get some supplies for crafts which need to be done for the wedding, and also to get me a new outfit for my hen party.

 After much deliberation about whether precious saving funds should be used to buy a new dress, we (me and P) decided that since I would only get one hen party (despite what the statistics might say), that I should feel really special. And, as mum pointed out, it can be a hen party/honeymoon outfit so that made me feel like I was a little more justified in buying something. I didn’t go crazy though, mummy took me to the fashionable boutique of Tesco and I spent a whole £7 on a new dress. I did splash out on a new jacket too which boosted the total cost up to almost £30.

 Going shopping for my hen party/honeymoon outfit has made me even more excited about this weekend. I just hope that going out for a couple of hours today won’t result in being too tired to enjoy the weekend. No, you haven’t lost a couple of days, you are correct in thinking that I begin conserving energy for a big weekend three days before the event. I did so before the family wedding on the weekend too, and it still took me four days to recover.

 I really just felt so horrendous yesterday. The pain and exhaustion made me just want to sleep away the whole day. The problem was the pain was just strong enough (even with painkillers) to keep me from sleeping most of the time. I can’t articulate how much I don’t want to be that sick after my hen weekend. I feel terrible writing these things because I know there are so many spoonies out there who would love to be in my position. It sounds ungrateful to be saying these things, it’s hardly terrible that I’m going to Bath for Saturday/Sunday. Even more so, I know I am incredibly lucky to have a mum and sister who took the time to learn how to look after me so that I could go places without Paul, and even that I can get out of my house to go anywhere, let alone on a mini-holiday.

 I don’t count these blessings lightly, I am grateful for them. When I am confronted by the painful accusations and remarks of unbelievers and have days as bad as yesterday, I become even more acutely aware of just how much worse life could be. I think my mummy is so wonderful for patiently taking me shopping today. It’s no easy feat, it means giving me so much attention, and not much time to shop for yourself. I am so privileged.

 What are you thankful for today?

Love Katie x


 

Here’s me at second mummy’s house all ready for the wedding

I don’t usually post on a Sunday but I wasn’t able to post yesterday because I was at a family wedding. I’ll write more about how I managed the day soon, but for now I’d just thought I’d share the picture with you. Still in my pjs, recovering, but managed to get some weddingy things done online so the day isn’t a total loss. We’re at second mummy’s house so I don’t want to sit on the computer but enjoy sometime with my soon-to-be little sisters. Enjoy the rest of your Sunday. 

Love Katie x

 

 


I’ve been struggling for what to write today. I’m so run down that I spent nearly all day in bed yesterday, resting and sleeping. Even when I was awake I was completely out of it. Sometimes I just lose whole days like that. I’m doing marginally better today. I’ve managed to get to see the doctor today about my skin so hopefully it will begin to improve in the next few days. My mum always says she knows when I’m run down because my skin gets really bad. I’m hoping a slow couple of days will help. Well, mainly slow…

I am also very excited and hoping I feel energetic enough for my first hen party with school friends tomorrow night. I feel like a teenager having a sleepover again, my mummy has bought pizzas and sweets for me, and we’re clearing up the house ready for the girls to arrive. And, on Friday, P and I are going to get our marriage licence. I wanted to have a nice picture of that morning, even though I imagine it will simply be Paul signing a piece of paper and us handing over a lot of money for it. I wanted to have pictures of every part of the wedding, but it’s been ruined somewhat by my horrid red, itchy face.

 

Oh well, I have long given up caring how I look in photos, it’s been a while since I recognised myself. You just have to not let it get to you, remember the good time the photo represents, and forget the vanity of your appearance.

 

Love Katie x


You must have begun to think I’d given up on this blog. Fear not, I am still alive and writing blogs, but only at night in my mind when I can’t sleep. So much has passed since I last took out a notebook and pen to write, I think that is probably part of the reason why you have seen new posts.

P and I did successfully manage to move, and it was even worse than we had anticipated. Mainly because the sheer amount of things we have managed to accumulate is incredible. I tried to be as ruthless as possible with getting rid of un-neeeded things, but still we had so much stuff to move that it took 5 trips in my dad’s 4by4. I have since spent a lot of my bedbound mornings running a monologue debating the reasons why we have such a lot of things. I’ll spare you the whole speech, and just drill down to the foundation the reason we have so much stuff is that we spend so much time at home.

Most students keep some of their things at their term-time address, and the rest in their bedrooms at their parents house, but because we usually live in Cardiff all year round, we moved basically everything we own to our new address. Secondly, and this is probably the more accurate reason, when you have periods of time where you’re stuck indoors for days on end, you need a lot of entertainment. For example, it can be awkward for P to find time to go to the gym so he has weights and an exercise bike in the house so he can workout whenever he wants, even if I’m really sick. We don’t have an more than a normal amount of clothes, shoes, or handbags (that’s me, not Paul), but my goodness do we have a lot of books. As the kind of people who want to know everything about everything (nothing is boring to me), we have a lot of reference books (including an encyclopedia published the year of my birth), academic books for university, and classic novels (my favourite) so not the kind of books you get rid of- they’re keepers. To add to this, we have two stackers full of DVDs and more, even though we had a clear out of the DVDs we never watch! We love films, and watch at least one everyday, I’m “watching” one right now (multi-tasker), especially on my bedbound days.

What takes up most of the room though are my craft things. I am terrible at starting lots of new projects, and not finishing them. Since I forgot to bring any craft projects home with me, I begun even more new ones since I arrived back here. My mummy is really into crafting too, so she’s been throwing an abundance of new ideas at me with her collection of books and ideas diary. She’s given me free reign of her extensive resources too!

In case you haven’t caught on already, Paul and I did decide to move home for the summer to save money. One of the things I like best about being at home is going to patchwork group with my mummy and nana. I love patchwork blankets, cushions, bags, etc, and have always wanted to be able to do it. I am hoping that this will be the summer that I finally get to grips with my sewing machine and make some patchwork projects, especially while I have been allowed unlimited access to the massive stock of material my mummy and nana have.

Anyway, this post has become a garble of ramblings. Fingers crossed, I shall manage to get to my parents’ computer more often from now on. I thought that coming home would mean oodles of free time but so far I’m struggling to fit everything into my diary, not completely convinced we will save any money or I’ll get any rest if we don’t start restricting ourselves!

Love Katie x


On 11th June Paulie turns 21. Although it doesn’t actually gain you more legal rights in the UK, it still feels like a big marker- the beginning of adulthood. I cannot think of a better excuse to spoil Paul, although in his characteristically selfless way P has said he doesn’t want me to go to any trouble. Someone like Paul needs to have his birth celebrated though, it should not be glazed over with minimum fuss because we’re getting married in September.

It seems like every single day revolves around me- my pain levels, whether I’m too tired to do something, my medication routine, etc- I wish I could give him a whole day devoted to him. A whole day where he has a normal girlfriend that he doesn’t need to worry about. At the very least I want to give him a couple of hours to have a party and a kick ass prezzie.

I know I can be honest enough to say it’s going to be tough to manage a party along with moving house and the wedding, but my goodness is he worth it. I thought there was no better way to celebrate adulthood than with a kid’s party.

I know P will appreciate anything I manage to do but I want him to have the best. He deserves the best. He’ll always have to accept less with me, which is why I’ve told him for a long time that until we say our vows he can leave without me holding a grudge. Plenty of our family and friends have let their tongue slip and told me in no uncertain terms that I’m lucky to have him, which I am but I think our closest family and friends would know he’s lucky to have me too. At first this upset me but now I know that what really matters is what Paul thinks. I can’t wait to celebrate our marriage with all our family and friends but what is most important to me is my groom, as long as he is there and we say our vows before God, that’s all that matters.

I want him to know how much he means to me on his birthday, if he hadn’t been born that day, well I don’t know what my life would be.

Love Katie x



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